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Info Session: Next Steps Towards the Global Action Plan on Rare Diseases
November 10 @ 10:00 am - 11:00 am
Help shape the WHO Global Action Plan on Rare Diseases!
An important opportunity is coming up for the global rare disease community to help shape the World Health Organization (WHO) Global Action Plan on Rare Diseases. In the coming weeks, WHO is expected to publish a Discussion Paper that will serve as the basis for a public consultation, inviting stakeholders worldwide to share their perspectives and recommendations.
RDI is preparing a coordinated consultation process to bring together voices from across the rare disease community, including RDI members, Regional Task Forces and partners. Through regional consultations, an open information session, an online survey and targeted stakeholder engagement, we aim to identify shared priorities and practical recommendations to inform the Global Action Plan.
📢 Want to get involved? Join one of our public information sessions on Tuesday, 10 November!
🗓️ Session 1: 10:00 CET | 14:30 IST | 17:00 SGT
👉 Register: https://lnkd.in/en5ggd6n
🗓️ Session 2: 16:00 CET | 10:00 EST
🗣️ Spanish interpretation available
👉 Register: https://lnkd.in/eHbPfBtb
Both sessions will introduce the consultation process and explain how stakeholders can contribute.
🤝 Together, we can help ensure that the perspectives and priorities of people living with rare diseases are heard and contribute to an ambitious, inclusive and actionable Global Action Plan.