Join us for a UHC Day campaign kick-off call on 29 September at 9 a.m. ET, where we will reveal this year’s UHC Day theme, share opportunities to engage with this year’s campaign, and discuss exciting new #HealthForAll partnerships.
The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. On October 7 – 9, 2022, the RNDS will host a hybrid event—participants can choose to attend either in-person, virtually via online streaming, or […]
Drug Repurposing for Rare Diseases highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. An event unique in its collaborative and multi-stakeholder focus, we bring patient groups, researchers and industry professionals together to showcase excellent examples of rare repurposing.
IPOPI‘s National Member Organisations are all invited to the XVII Global Patients’ Meeting in Gothenburg, Sweden, 12-15 October 2022! Join us for an opportunity to finally meet up with the global PID community in person, and enjoy three days of educational sessions presenting the latest medical advances on primary immunodeficiencies, as well as fruitful discussions […]
WPA’s 1st World Patients Conference will provide patients the platform and opportunity to network, exchange information, share experiences, learn from each other, raise your voice, and advocate for patients cause internationally.
The International Federation for Spina Bifida and Hydrocephalus warmly INVITES persons with Spina Bifida and Hydrocephalus from all over the world as well as all interested parties to celebrate the 10th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) on the topic of “Elevate Your Voice” on October 25 2022. Various activities will […]
Annual Awareness Day on November 1st, to raise awareness for patients diagnosed with Acromegaly. The goal is to help people with this rare endocrine disease get the timely diagnosis and effective treatment they need and deserve.