2024
RDI is granted special consultative status with the United Nations Economic and Social Council (ECOSOC)
UN Political Declaration on UHC
2023
The UN adopt a new Political Declaration on “UHC expanding our ambition for health and well-being in a post-COVID world” with Rare Diseases included
GLOBAL ADVOCACY CAMPAIGN
2021
Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021
UN RESOLUTION
2021
The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”
UHC INCLUDES RARE DISEASES
2019
Rare Diseases are included in the UN Political Declaration on Universal Health Coverage
RARE DISEASES INTERNATIONAL
2015
RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia.