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Archives: Timeline Slider

GLOBAL ADVOCACY CAMPAIGN

Posted on December 16, 2021December 17, 2021 by Jean-Marc Sfeir

2021

Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021

Advocacy Toolkit

UN RESOLUTION

Posted on December 16, 2021December 17, 2021 by hlawulani

2021

The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”

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AGREEMENT WITH WHO

Posted on October 18, 2021December 20, 2021 by hlawulani

2019

WHO and RDI sign a Memorandum of Understanding for future collaboration

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UHC INCLUDES RARE DISEASES

Posted on October 18, 2021December 16, 2021 by hlawulani

2019

Rare Diseases are included  in the UN Political Declaration on Universal Health Coverage

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FIRST UN POLICY EVENT

Posted on October 18, 2021December 16, 2021 by hlawulani

2019

RDI co-hosts the first Rare Disease Day Policy Event at the United Nations.

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RARE DISEASES INTERNATIONAL

Posted on September 22, 2021December 16, 2021 by hlawulani

2015

RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia.

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