2021
Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021
Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021
The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”
Rare Diseases are included in the UN Political Declaration on Universal Health Coverage
RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia.