GLOBAL ADVOCACY CAMPAIGN

2021

Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021

The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”

WHO and RDI sign a Memorandum of Understanding for future collaboration

Rare Diseases are included in the UN Political Declaration on Universal Health Coverage

RDI co-hosts the first Rare Disease Day Policy Event at the United Nations.

RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia.