Sign up to
mailing list
Follow
us
Follow
us
  • About RDI
    • Who are we?
    • Vision, Mission & Objectives
    • History
    • Governance
    • The RDI Team
    • Committees and Working Groups
    • Activity Report & Action Plan
    • Funding
  • Our Actions
    • UN Advocacy
    • Working with the WHO
    • The World Health Assembly
    • Policy Positions
    • Policy Events
    • International Collaborations
    • COVID-19: Resource Centre
  • Programmes
    • RDI Alliance of Companies
    • RDI Conference Programme
    • RDI Fellowship Programme
  • Membership
    • Our Members
    • Become a Member
    • Membership Meetings
    • Membership Fees
    • Meet Our Members
  • News & Events
    • Latest News
    • Monthly Newsletters
    • Member Events
    • International Rare Disease Events
    • Webinars
    • Share your event
  • Contact

Presentations from the 2016 Rare Diseases International annual meeting

1. RDI Progress so far and first achievements – Paloma Tejada, Senior Manager, Rare Diseases International

2. The United Nations Committee for Rare Diseases – Anders Olauson, Founder and Chairman, AGRENSKA Foundation3. “Treatment for all: the challenges of tackling a rare global disease” – Alain Baumann, Chief Executive Officer, World Federation of Hemophilia 

3. RDI Draft Action Plan 2016-2018– Yann Le Cam, Chief Executive Director, EURORDIS

4. “Supporting countries emerging to rare diseases” – John Forman, President of International Conferences on Rare Diseases and Orphan Drugs (ICORD)

5. “Exploring synergies and common objectives between the patient community and industry”– Emmanuel Chantelot, Head of International Government Relations and Public Affairs, Shire and Chair of International Federation of Pharmaceutical Manufacturers & Associations  Rare Disease Working Group

6. “International Rare Diseases Research Consortium: Fostering patient engagement in Rare Disease Research funding”– Dr. Iiro Eerola, Scientific Project Officer in the European Commission, DG Research and Innovation, Directorate for Health in the Unit for Innovative and Personalised Medicine

  • RDI Membership Meeting 2016 highlights
  • EURORDIS Membership Meeting 2016 Presentations
Become a member
See RDI Members
Tweets by @rarediseasesint


  • About RDI
  • Become a Member
  • RDI News
  • Contact Us
Sign up to
mailing list
Follow
us
© 2021 Rare Diseases International