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Presentations from the 2016 Rare Diseases International annual meeting

1. RDI Progress so far and first achievements – Paloma Tejada, Senior Manager, Rare Diseases International

2. The United Nations Committee for Rare Diseases – Anders Olauson, Founder and Chairman, AGRENSKA Foundation3. “Treatment for all: the challenges of tackling a rare global disease” – Alain Baumann, Chief Executive Officer, World Federation of Hemophilia

3. RDI Draft Action Plan 2016-2018– Yann Le Cam, Chief Executive Director, EURORDIS

4. “Supporting countries emerging to rare diseases” – John Forman, President of International Conferences on Rare Diseases and Orphan Drugs (ICORD)

5. “Exploring synergies and common objectives between the patient community and industry”– Emmanuel Chantelot, Head of International Government Relations and Public Affairs, Shire and Chair of International Federation of Pharmaceutical Manufacturers & Associations Rare Disease Working Group

6. “International Rare Diseases Research Consortium: Fostering patient engagement in Rare Disease Research funding”– Dr. Iiro Eerola, Scientific Project Officer in the European Commission, DG Research and Innovation, Directorate for Health in the Unit for Innovative and Personalised Medicine