RDI Capacity Building

RDI Capacity Building aims to strengthen the global rare disease civil community and enable patient organisations to drive local, national and regional advocacy.

Prader–Willi syndrome – Mexico

Programme Objectives:

  • Help to build the capacities of patient advocates and their organisations around the world
  • Empower RDI Member Organisations to shape and contribute to RDI initiatives and programmes
  • Encourage meaningful participation of patient advocates in global collaborations and initiatives
  • Support networking of rare disease organisations with each other and other stakeholders
  • Facilitate sharing of knowledge and best practices

RDI Capacity Building 2022

RDI is re-launching the Capacity Building Programme. The new programme will begin in 2022 and is organised along 3 key topic areas and tracks identified by RDI Members

Advocating for Persons Living with Rare Diseases & their families
Access & Equity
Global collaborations

Each content track will be presented through crowd-sourced materials from our members, toolkits & resources, and workshops, as well as live meetings and opportunities for discussion.


RDI 2021 Events


Member-led Workshops 2021

Canadian Organization for Rare Disorders (CORD) – “Knowledge-Sharing on Advanced Therapies”. (workshop series)


Conference and Fellowship Support 2021


For more information contact, Hlawulani Mkhabela