membros do IDI

Uma aliança global de organizações dirigidas por doentes que trabalham em conjunto para promover a equidade para todas as Pessoas com uma Doença Rara.


Our members worldwide

Alianza Argentina de Pacientes
Associate
Federación Argentina de Enfermedades Poco Frecuentes
Full
Genetic Support Network of Victoria
Associate
Pro Rare Austria, Allianz für seltenen Erkrankungen
Full
FEDERG – Federation of European Associations of Patients affected by Renal Diseases
Full
International Federation for Spina Bifida and Hydrocephalus
Full
Botswana Organization For Rare Diseases
Associate
Associacao Brasileira de Enfermedades Raras (FEBER)
Full
Canadian Organization For Rare Disorders
Full
Global Alliance of Sickle Cell Disease Organisations
Associate
International Alliance of Dermatology Patient Organizations
Associate
World Federation of Hemophilia
Full
China Alliance For Rare Diseases
Full
Chinese Organization for Rare Disorders
Full
Illness Challenge Foundation
Full
Federacion Colombiana De Enfermedades Raras
Full
Cyprus Alliance For Rare Disorders
Full
Pancyprian Federation of Patients’ Associations and Friends
Associate
Thalassaemia International Federation
Full
Georgian Foundation for Genetic and Rare Diseases
Full
Allianz Chronischer Seltener Erkrankungen e.V.
Full
Esophageal Atresia Global Support Groups
Full
Rare Diseases Ghana Initiative
Associate
Pespa (Greek Alliance for Rare Diseases)
Full
Indian Organization for Rare Diseases
Full
Organization For Rare Diseases India
Full
Rare Disease Foundation of Iran
Full
Association Aux Pas du Coeur
Full
Advocacy Service for Rare and Intractable Diseases
Full
Japan Patient Association
Full
Rare Diseases Lesotho Association
Full
Malaysian Rare Disorders Society
Full
National Alliance For Rare Diseases Support – Malta
Full
Federación Mexicana de Enfermedades Raras
Full
World Alliance of Pituitary Organizations
Full
World Duchenne Organization
Full
Philippine Society For Orphan Disorders
Associate
Associacao Portuguesa CDG e Outras Doencas Metabolicas
Associate
Romanian National Alliance For Rare Diseases
Full
Russian Patient Association
Full
National Organization For Rare Diseases of Serbia
Full
Asia Pacific Alliance of Rare Disease Organisations (APardo)
Full
Aliber-Alianza Iberoamericana de Enfermedades Raras
Full
Asociación de Familiares y Afectados por Lipodistrofias (AELIP)
Full
FEDER – Federación Española De Enfermedades Raras
Full
Arabic Organisation For Rare Diseases
Full
International Federation of Psoriasis Associations (IFPA)
Associate
Rare Diseases Sweden (Riksförbundet Sällsynta Diagnoser)
Full
Leukemia Patient Advocates Foundation
Full
International Gaucher Alliance
Full
International Niemann-Pick Disease Alliance
Full
International Patient Organization for Primary Immunodeficiencies
Full
International Prader-Willi Syndrome Organisation
Full
Nicolaides-Baraitser Syndrome Worldwide Foundation
Full
Timothy Syndrome Alliance
Associate
MCT8-AHDS Foundation Inc.
Full
Nord National Organization for Rare Disorders
Full
Latin Society of Pulmonary Hypertension (PH Latin Society)
Full
Child & Youth Care, Zimbabwe
Associate
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