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X-WR-CALNAME:Rare Diseases International
X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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TZID:Europe/Paris
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DTSTART:20220327T010000
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DTSTART:20221030T010000
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DTSTART:20220101T000000
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230202T140000
DTEND;TZID=Europe/Paris:20230202T144500
DTSTAMP:20260513T233855
CREATED:20230119T092108Z
LAST-MODIFIED:20230119T092108Z
UID:10000309-1675346400-1675349100@www.rarediseasesinternational.org
SUMMARY:Webinar - What is a Rare Disease
DESCRIPTION:A deep-dive into the internationally endorsed Operational Description of Rare Diseases\, a common reference developed by Rare Diseases International (RDI) working with an expert panel and collaborating with the World Health Organization. \nRegister : https://us02web.zoom.us/meeting/register/tZEsdeGqrj0tE9f21OLViF6A6ylP-FlWVWYe
URL:https://www.rarediseasesinternational.org/event/whatisard/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2023/01/Website-Event-RD-Description-6.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221128T000000
DTEND;TZID=UTC:20221128T000000
DTSTAMP:20260513T233855
CREATED:20221122T151913Z
LAST-MODIFIED:20221122T151913Z
UID:10000304-1669593600-1669593600@www.rarediseasesinternational.org
SUMMARY:UNESCO-IBE\, Agrenska\, RDI\, - Improving inclusion of children living with a rare disease through curriculum transformation
DESCRIPTION:UNESCO-IBE is inviting you to join the webinar on “Improving inclusion of children living with a rare disease through curriculum transformation”\, co-organised with the Agrenska Foundation and Rare Diseases International and taking place on 28 November 2022 2:00-4:00 PM – Geneva time – (UTC+1). \nRegister here : https://unesco-org.zoom.us/webinar/register/WN_fLY9Q7WITmGJnL_F9OT09A \nMore info here : http://www.ibe.unesco.org/en/event/webinar-improving-inclusion-children-living-rare-disease-through-curriculum-transformation
URL:https://www.rarediseasesinternational.org/event/webnar-inclusion-children-rare-diseases-unesco-2022-11-28/
CATEGORIES:Hosted by RDI,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20221117T000000
DTEND;TZID=Europe/Paris:20221117T000000
DTSTAMP:20260513T233855
CREATED:20221116T101610Z
LAST-MODIFIED:20221116T101610Z
UID:10000303-1668643200-1668643200@www.rarediseasesinternational.org
SUMMARY:Cobertura Universal de Salud para las enfermedades raras: Preguntas clave
DESCRIPTION:Taller previo a la conferencia\n17 de noviembre de 2022\n11:00-12:15 GMT-3 / 15:00-16:15 CET\nVirtual event → Haga clic aquí para participar : bit.ly/3O8nnVP (no es necesario registrarse antes) \n¡Complete la encuesta antes del taller! → https://forms.gle/z9RL5vSeUftpdeAL7
URL:https://www.rarediseasesinternational.org/event/cus-enfermedades-raras-2022-11-17/
CATEGORIES:Hosted by RDI,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20221012T140000
DTEND;TZID=Europe/Helsinki:20221012T150000
DTSTAMP:20260513T233855
CREATED:20220922T161142Z
LAST-MODIFIED:20220922T161142Z
UID:10000294-1665583200-1665586800@www.rarediseasesinternational.org
SUMMARY:#ACT4RARE Toolkit - NEW UN Resolution Toolkit Launch (ONLINE)
DESCRIPTION:The UN Resolution on Persons Living with a Rare Disease was adopted in December 2021. Now what? How can you use it? How can you tell you country’s decision makers to act? \nJoin us for a presentation of the #ACT4RARE Toolkit to raise awareness and call action in the UN Resolution. \nThe #ACT4RARE toolkit will include :\n– A summary of the actions all countries have agreed to take\n– Template letters for policymakers\n– Social Media kit – with post images and GIFs\nAnd more !
URL:https://www.rarediseasesinternational.org/event/act4rar-toolkit-launch-2022-10-12/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-17.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220927T140000
DTEND;TZID=UTC:20220927T150000
DTSTAMP:20260513T233855
CREATED:20220909T141529Z
LAST-MODIFIED:20220909T141529Z
UID:10000284-1664287200-1664290800@www.rarediseasesinternational.org
SUMMARY:Webinar on ICD-11 use for Rare Diseases
DESCRIPTION:As part of WHO ICD-11 webinar series\, the Classifications and Terminologies Unit in collaboration with the Healthier Populations Division at WHO and Rare Diseases International is organising an ICD-11 webinar that will be held on September 27th\, 2022. ONLINE. \nAn Event co-organised by the WHO and Rare Diseases International.
URL:https://www.rarediseasesinternational.org/event/who-icd11-rdi-webinar-2022-09-27/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-10.png
ORGANIZER;CN="The World Health Organization":MAILTO:https://www.who.int/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220616T140000
DTEND;TZID=UTC:20220616T170000
DTSTAMP:20260513T233855
CREATED:20220425T155554Z
LAST-MODIFIED:20220426T094211Z
UID:10000111-1655388000-1655398800@www.rarediseasesinternational.org
SUMMARY:RDI Membership Meeting (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-membership-meeting-2022-6/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220615T140000
DTEND;TZID=UTC:20220615T160000
DTSTAMP:20260513T233855
CREATED:20220425T155154Z
LAST-MODIFIED:20220425T162350Z
UID:10000110-1655301600-1655308800@www.rarediseasesinternational.org
SUMMARY:RDI General Assembly
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-general-assembly-2022-4-2/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220524T183000
DTEND;TZID=UTC:20220524T203000
DTSTAMP:20260513T233855
CREATED:20220428T105319Z
LAST-MODIFIED:20220428T110013Z
UID:10000197-1653417000-1653424200@www.rarediseasesinternational.org
SUMMARY:RDI Informal Side-Event  75th World Health Assembly
DESCRIPTION:Networking experts\, centers of expertise and patient organizations to Strengthen Health Systems for Rare Diseases
URL:https://www.rarediseasesinternational.org/event/informal-side-event/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220330T160000
DTEND;TZID=UTC:20220330T160000
DTSTAMP:20260513T233855
CREATED:20220317T083035Z
LAST-MODIFIED:20220317T083035Z
UID:10000178-1648656000-1648656000@www.rarediseasesinternational.org
SUMMARY:RDI Webinar - Essential List of Medicinal Products for Rare Diseases
DESCRIPTION:Open only to RDI Member Organisations
URL:https://www.rarediseasesinternational.org/event/ecrd-2022-3/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/03/Website-Event-Image-1.jpg
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