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DTSTART;VALUE=DATE:20221025
DTEND;VALUE=DATE:20221026
DTSTAMP:20260522T051439
CREATED:20220928T142118Z
LAST-MODIFIED:20220928T142118Z
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SUMMARY:World Spina Bifida and Hydrocephalus Day 2022
DESCRIPTION:The International Federation for Spina Bifida and Hydrocephalus warmly INVITES persons with Spina Bifida and Hydrocephalus from all over the world as well as all interested parties to celebrate the 10th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) on the topic of “Elevate Your Voice” on October 25 2022. Various activities will take place around the WSBHD22 throughout the month of October. All events\, materials\, information and latest updates are available on www.worldspinabifidahydrocephalusday.com
URL:https://www.rarediseasesinternational.org/event/world-spina-bifida-and-hydrocephalus-day-2022-10-25/
CATEGORIES:Hosted by RDI Member
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DTSTART;TZID=Europe/Helsinki:20220506T120000
DTEND;TZID=Europe/Helsinki:20220506T130000
DTSTAMP:20260522T051439
CREATED:20220503T095521Z
LAST-MODIFIED:20220504T091057Z
UID:10000201-1651838400-1651842000@www.rarediseasesinternational.org
SUMMARY:IFSBH MEMBERS TRAINING : From local to global – How to influence international actions through national advocacy (Online)
DESCRIPTION:The next IF members training on policy and advocacy will take place on May 6 2022 at 12 PM Brussels time. \nA session to discuss the role of civil society in shaping the activities of international organisations and how campaigns for actions are designed and implemented. \nDolores Cvitičanin – Public Affairs Manager at RDI – will speak further on how to use a UN Resolution on a National Advocacy level.\n\nParticipation is limited to two participants from each IF member association\n 
URL:https://www.rarediseasesinternational.org/event/ifsbh-membership-training-2022-5/
CATEGORIES:Hosted by RDI Member
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