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X-WR-CALNAME:Rare Diseases International
X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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TZID:UTC
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DTSTART:20240101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250925T170000
DTEND;TZID=UTC:20250925T180000
DTSTAMP:20260522T013436
CREATED:20250911T150503Z
LAST-MODIFIED:20250911T150707Z
UID:10000373-1758819600-1758823200@www.rarediseasesinternational.org
SUMMARY:RDI Regional Webinar: From WHA Resolution to Action: Next Steps for Latin America and the Caribbean
DESCRIPTION:Join us for a webinar co-hosted by ALIBER\, Casa Hunter and ERCAL to learn how we can work together to ensure that the WHA Resolution has real impact for Persons Living with a Rare Disease in Latin America and the Caribbean.
URL:https://www.rarediseasesinternational.org/event/rdi-regional-webinar-from-wha-resolution-to-action-next-steps-for-latin-america-and-the-caribbean/
CATEGORIES:Hosted by RDI,Regional Meeting
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DTSTART;TZID=UTC:20241016T080000
DTEND;TZID=UTC:20241017T170000
DTSTAMP:20260522T013436
CREATED:20240731T132627Z
LAST-MODIFIED:20240731T132627Z
UID:10000360-1729065600-1729184400@www.rarediseasesinternational.org
SUMMARY:Congress on Rare Diseases for Latin America and the Caribbean
DESCRIPTION:Americas Health Foundation (AHF) presents the second edition of the Congress on Rare Diseases for Latin America and the Caribbean\, a hybrid event designed to delve into the challenges and opportunities related to rare diseases in the region. This congress will address critical issues such as access to treatment\, regulation\, infrastructure\, registration and public policy. The congress will have a solutions-based approach to propose viable and actionable recommedations that benefit patients\, their families\, healthcare systems and society at large. \nThis event will bring together a wide range of key stakeholders\, including patient organizations\, medical and academic associations\, public sector representatives and the pharmaceutical industry. Together\, these participants will work to generate synergies and formulate recommendations to help overcome the challenges faced by the rare disease community in Latin America and the Caribbean. \nThe second edition of the Rare Disease Congress for Latin America and the Caribbean promises to be a dynamic and enriching space\, where collaboration and commitment will be key to advancing the improvement of care and treatment of rare diseases in the region.
URL:https://www.rarediseasesinternational.org/event/congress-on-rare-diseases-for-latin-america-and-the-caribbean/
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