Membership Meetings

RDI Membership Meeting Vienna 2018

The next Annual Meeting of RDI will take place on May 10th, 2018 in Vienna, Austria, the day before and in the same place as the European Conference on Rare Diseases & Orphan Products.
The Annual Meeting will focus on the latest tools available to advocate internationally and upcoming opportunities to get involved in RDI’s plans to put rare diseases on the United Nations 2030 Sustainable Development Agenda.
The meeting will be organised in two sessions: Extraordinary General Assembly from 9:30 to 1:00pm (for Members Only) and the Annual Meeting from 2:00pm to 4:00pm (open to Members and non-Members).

Agenda.

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RDI Membership Meeting Barcelona 2017

Barcelona Sagrada Familia

RDI’s 3rd Annual Meeting was held on June 4th, 2017 in Barcelona, Spain. Read more about it here.

 

RDI Membership Meeting Edinburgh 2016

Edinburgh city skyline

RDI’s Annual Meeting was held on May 25th, 2016 – the day before and in the same premises as the European Conference on Rare Diseases & Orphan Products (ECRD 2016) in Edinburgh, Scotland. Read more about it here.

 

RDI Membership Meeting Madrid 2015

Madrid city skyline

The first annual meeting of RDI took place on May 28th, 2015 in Madrid, Spain, alongside the EURORDIS Membership Meeting. Read more about it here.



 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases