Rare Diseases International members

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NameCountrytypeWebsite
Retina International SWITZERLAND Full Member www.retina-international.org
Romanian National Alliance for Rare Diseases ROMANIA Full Member www.bolirareromania.ro
Russian Patient Association RUSSIA Full Member www.patients.ru
Thalassaemia International Federation CYPRUS Full Member www.thalassaemia.org.cy
The Ehlers-Danlos Society UNITED STATES Full Member www.ehlers-danlos.com
The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups e.V. (EAT) Germany Full Member www.we-are-eat.org
Timothy Syndrome Alliance UNITED KINGDOM Associate Member timothysyndrome.org
Wilhelm Foundation SWEDEN Full Member wilhelmfoundation.org
World Alliance of Pituitary Organizations (WAPO) NETHERLANDS Full Member www.wapo.org
World Duchenne Organization The Netherlands Full Member www.worldduchenne.org