Rare Diseases International members
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Romanian National Alliance for Rare Diseases
ROMANIA Full Member www.bolirareromania.ro/ |
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Russian Patient Association
RUSSIA Full Member www.patients.ru |
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Thalassaemia International Federation
CYPRUS Full Member thalassaemia.org.cy/ |
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The Ehlers-Danlos Society
UNITED STATES Full Member www.ehlers-danlos.com |
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The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups e.V. (EAT)
Germany Full Member http://www.we-are-eat.org |
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World Alliance of Pituitary Organizations (WAPO)
NETHERLANDS Full Member www.wapo.org/ |
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World Federation of Hemophilia
Canada Full Member www.wfh.org/ |