Rare Diseases International members

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Russian Patient Union
RUSSIA
Full Member
Link Text
Thalaessemia International Federation
CYPRUS
Full Member
Link Text
The Ehlers-Danlos Society
UNITED STATES
Associate Member
Link Text
The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups e.V. (EAT)
Germany
Full Member
http://www.we-are-eat.org
World Alliance of Pituitary Organizations association (WAPO)
NETHERLANDS
Full Member
Link Text
World Federation of Hemophilia
Canada
Full Member
www.wfh.org/


 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases