Rare Diseases International members

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NameCountrytypeWebsite
Indian Organization for Rare Diseases INDIA Full Member www.i-ord.org
Instituto Vidas Raras BRAZIL Full Member www.vidasraras.org
International Federation for Spina Bifida and Hydrocephalus Belgium Full Member www.ifglobal.org
International Gaucher Alliance UK Full Member www.eurogaucher.org
International Niemann-Pick Disease Alliance United Kingdom Full Member www.inpda.org
International Organisation for Primary Immunodeficiencies UNITED KINGDOM Full Member www.ipopi.org
International Prader-Willi Syndrome Organisation UNITED KINGDOM Full Member www.ipwso.org
Japan Patient Association JAPAN Full Member www.nanbyo.jp
Latin Society of Pulmonary Hypertension UNITED STATES Full Member www.sociedadlatinahp.org
Leukemia Patient Advocates Foundation SWITZERLAND Full Member www.cmladvocates.net