Rare Diseases International members

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Instituto Vidas Raras
BRAZIL
Full Member
www.vidasraras.org
International Federation for Spina Bifida and Hydrocephalus
Belgium
Full Member
www.ifglobal.org
International Gaucher Alliance
UK
Full Member
www.eurogaucher.org
International Niemann-Pick Disease Alliance
United Kingdom
Full Member
www.inpda.org
International Organisation for Primary Immunodeficiencies
UNITED KINGDOM
Full Member
www.ipopi.org
International Prader-Willi Syndrome Organisation
UNITED KINGDOM
Full Member
www.ipwso.org
Japan Patient Association
JAPAN
Full Member
www.nanbyo.jp
Latin Society of Pulmonary Hypertension
UNITED STATES
Full Member
www.sociedadlatinahp.org
Leukemia Patient Advocates Foundation
SWITZERLAND
Full Member
www.cmladvocates.net
Malaysian Rare Disorders Society
MALAYSIA
Full Member
www.mrds.org.my