Rare Diseases International members

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Organization for Rare Diseases India (ORDI)
India
Full Member
ordindia.org
Pro Rare Austria
AUSTRIA
Full Member
http://www.prorare-austria.org
Pulmonary Hypertension Latin Society
UNITED STATES
Full Member
http://www.sociedadlatinahp.org
Rare Disease Foundation of Iran
IRAN
Full Member
http://www.radoir.com
Rare Diseases Croatia
CROATIA
Full Member
www.rijetke-bolesti.hr/
Rare Diseases South Africa
SOUTH AFRICA
Full Member
http://www.rarediseases.co.za
Rare Diseases Sweden
SWEDEN
Full Member
https://www.sallsyntadiagnoser.se/
Rare Voices Australia
AUSTRALIA
Full Member
http://www.rarevoices.org.au
Retina International
SWITZERLAND
Full Member
http://www.retina-international.org
Romanian National Alliance for Rare Diseases
ROMANIA
Full Member
http://www.bolirareromania.ro/


 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases