Rare Diseases International members

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International Niemann-Pick Disease Alliance
United Kingdom
Full Member
inpda.org/
Japan Patient Association
JAPAN
Full Member
http://www.nanbyo.jp
Malaysian Rare Disorders Society
MALAYSIA
Full Member
http://www.mrds.org.my
MCT8-AHDS Foundation
USA
Full Member
Link Text
Naevus Global
France
Full Member
http://www.naevusglobal.org
National Alliance for Rare Diseases Support - Malta
MALTA
Associate Member
Link Text
National Organization for Rare Disorders
UNITED STATES
Full Member
http://www.rarediseases.org
New Zealand Organisation for Rare Disorders
NEW ZEALAND
Full Member
http://www.nzord.org.nz
Norbs
SERBIA
Full Member
Link Text
Nordic hypoPARA Organisation
NORWAY
Full Member
http://www.hypopara-nordic.org/


 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases