Rare Diseases International members

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Indian Organization for Rare Diseases
INDIA
Full Member
www.i-ord.org
Instituto Vidas Raras
BRASIL
Full Member
www.vidasraras.org.br/
International Federation for Spina Bifida and Hydrocephalus
Belgium
Full Member
www.ifglobal.org
International Gaucher Alliance
UK
Full Member
www.eurogaucher.org/
International Niemann-Pick Disease Alliance
United Kingdom
Full Member
inpda.org/
International Organisation for Primary Immunodeficiencies
UNITED KINGDOM
Full Member
www.ipopi.org
International Prader-Willi Syndrome Organisation
UNITED KINGDOM
Full Member
www.ipwso.org
Japan Patient Association
JAPAN
Full Member
nanbyo.jp/
Leukemia Patient Advocates Foundation
SWITZERLAND
Full Member

Malaysian Rare Disorders Society
MALAYSIA
Full Member
www.mrds.org.my