Rare Diseases International members

Sort by:
Genetic Alliance Australia
AUSTRALIA
Full Member
http://www.geneticalliance.org.au
Genetic Alliance South Africa
SOUTH AFRICA
Full Member
http://www.geneticalliance.org.za/
German Alliance of Chronic Rare Diseases (ACHSE)
GERMANY
Full Member
Link Text
Greek Alliance for Rare Diseases (PEPSA)
Greece
Full Member
http://pespa.gr/
Hongkong Alliance for Rare Diseases
HONG KONG
Full Member
http://www.hkard.org
Iberoamerican Alliance for Rare Diseases
SPAIN
Full Member
http://www.aliber.org
Indian Organization for Rare Diseases
INDIA
Full Member
http://www.i-ord.org
InternatIional Organisation for Primary Immunodeficiencies
UNITED KINGDOM
Full Member
http://www.ipopi.org
International Federation for Spina Bifida and Hydrocephalus
Belgium
Full Member
www.ifglobal.org
International Gaucher Alliance
UK
Full Member
www.eurogaucher.org/


 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases