Rare Diseases International members

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Cutis Laxa International
FRANCE
Full Member
http://www.cutislaxa.org/
Cyprus Alliance for Rare Disorders
CYPRUS
Full Member
http://www.raredisorderscyprus.com
DEBRA International
AUSTRIA
Full Member
http://www.debra-international.org/
EURORDIS Rare Diseases Europe
FRANCE
Full Member
http://www.eurordis.org
Federación Argentina de Enfermedades Poco Frecuentes
ARGENTINA
Full Member
http://www.fadepof.org.ar
Federación Colombiana de Enfermedades Raras
Colombia
Full Member
www.fecoer.org/
Federacion Espanola de Enfermedades Raras
SPAIN
Full Member
http://www.enfermedades-raras.org
Federacion Mexicana de Enfermedades Raras
MEXICO
Full Member
http://www.femexer.org
Federation of European Associations of Patients Affected by Renal Genetic Diseases
BELGIUM
Full Member
http://federg.org
Findacure
UNITED KINGDOM
Associate Member
http://www.findacure.org.uk


 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases