Members’ Events


RDI Membership Meeting 2019 New York
20 February 2019, New York City, USA
See details of the event here


VI Encuentro Iberoamericano de Enfermedades Raras
19-24 November 2018, Bogota, Colombia
See details of the event here

Conférence de l’Alliance Maladies Rares – CARE’18 “un diagnostic pour tous”
12 November 2018, Paris, France
See details of the event here

NORD Rare Summit
15-16 October 2018, Washington DC, USA
See details of the event here

World MCT8-AHDS Day
8 October 2018
See details of the event here

RareX 2018
13-16 September 2018, Johannesburg, South Africa
See details of the event here

RDI Membership Meeting 2018 Vienna
10 May 2018, Vienna, Austria
See details of the event here

Re(ACT) Congress
7-10 March 2018, Bologna, Italy
See details of the event here


RDI Membership Meeting 2017 Barcelona
4 June 2017, Barcelona, Spain
See details of the event here

Rare Diseases International Policy Event
10 February 2017, Geneva, Switzerland,
See details of the event here


2nd Rare Disease Asia Conference 2016
17-19 November, Kuala Lumpur, Malaysia,

VII All-Russian Congress of Patients
9-10 November, Moscow, Russia,

RareX 2016
19-22 October, Cape Town, South Africa,

ESID Biennial Meeting (together with IPOPI and INGID)
21-24 September, Barcelona, Spain,

Ibero American Conference
19-23 September, Montevideo, Uruguay,

RDI Membership Meeting 2016 Edinburgh
25 May 2016, Edinburgh, Scotland
See details of the event here

IPOPI Asian Regional Patients Meeting
27-28 April, Hong Kong,

RE(ACT) International Congress on Research of Rare and Orphan Diseases
9-12 March, Barcelona, Spain,

Findacure Scientific Conference ‘Drug Repurposing for Rare Diseases’
29 February, London, UK,

Hong Kong Alliance for Rare Diseases World Rare Disease Day Symposium
28 February, Hong Kong

PLUS Stakeholders Consensus Meeting
14-15 January, Estoril, Portugal


4th Latin American Meeting of Rare Disease Patient Organizations

12-13 October, Mexico City, Mexico

China Rare Disease Summit
18-19 September, Beijing, China

RDI Membership Meeting 2015 Madrid
28 May 2015, Madrid, Spain
See details of the event here


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases