Rare Diseases International represents the global rare disease patient voice and plays a key role in the following initiatives:
The NGO Committee for Rare Diseases aims to promote multi-stakeholder collaboration and actions for rare diseases within the United Nations system.
IRDiRC promotes international collaboration and advances rare disease research worldwide. RDI is part of the Consortium Assembly and participates in the Patient Advocates Constituent Committee and the Rare Disease Treatment Access Working Group.
The Global Commission is a multi-disciplinary group developing recommendations and actionable pilots to end the diagnostic odyssey and improve the lives of children and families across the globe.