RDI organises webinars to consult with its members and other stakeholder groups
Webinars are in English
UHC Day 2021 Event – Strengthening Care Systems to Achieve Equity
13 December 2021
RDI Rare Disease Day Policy Event – Call for a UN Resolution
4 March 2021
UHC DAY WEBINAR: ADDRESSING RARE DISEASES THROUGH UNIVERSAL HEALTH COVERAGE
Co-hosted with EURORDIS to mark UHC Day 2020
GETTING RIGHTS « RIGHT »: AN INTERNATIONAL FRAMEWORK FOR RARE DISEASES
Pre-recorded conference session at the European Conference on Rare Diseases 14 May 2020.
WHO COLLABORATIVE GLOBAL NETWORK FOR RARE DISEASES
27 April 2020
RDI’S 2019 WORK PROGRAMME (ACTION PLAN AND BUDGET)
14 December 2018
THE GLOBAL COMMISSION TO END THE DIAGNOSTIC ODYSSEY FOR CHILDREN WITH RARE DISEASES
19 October 2018
You can read a summary of the draft recommendations here.
WEBINAR TO DISCUSS THE LEGAL INCORPORATION OF RDI AND OVERALL ACTION PLAN FOR 2018
23 April 2018
THE UNITED NATIONS AND HOW YOU CAN HELP GET RARE DISEASES ON THE UN AGENDA
9 October 2017
RDI organised a webinar to discuss practical ways to put rare diseases on the agendaa of the United Nations as part of a step-wise approach toward a United Nations Resolution on Rare Diseases.
Yann Le Cam, CEO of EURORDIS and Member of the RDI Council, gave an overview of the United Nations system and how it works. He also described the actions that will be undertaken by the NGO Committee for Rare Diseases in 2018 to give visibility to rare diseases on the UN 2030Agenda.
28 patient representatives attended the webinar, asked questions and commented on the proposed strategy and activities for next year. Together they explored ways in which they could help by reaching out to their governments through their Ministries or Permanent Representations in New York.
RDI ACTION PLAN Q&A
19 October 2017
This webinar was an opportunity for participants to give their opinion on the draft RDI 2017 Action Plan. Yann Le Cam, a member of the RDI Council and CEO of EURORDIS-Rare Diseases Europe, and Paloma Tejada, Senior Manager of RDI, presented the draft Action Plan.