Matt Bolz-Johnson
Programme Director - Collaborative Global Network for Rare Diseases
Les Bénévoles :
Claudia Hirawat
Senior Liaison to the UN System (New York) EURORDIS International Advocacy Team
Lucia Monaco
RDI Global State of the Art Resource (GSoAR) Volunteer
Paola Ricci
Senior Liaison in Geneva – EURORDIS International Advocacy Team
Noël Wathion
EURORDIS Representative for Regulatory Science and International Policy