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X-WR-CALNAME:Rare Diseases International
X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20260101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260520T180000
DTEND;TZID=UTC:20260520T210000
DTSTAMP:20260507T062240
CREATED:20260413T113513Z
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SUMMARY:WHA 79 Side Event - Rare Diseases: a Catalyst for Global Health Transformation
DESCRIPTION:Rare diseases expose the stress points of our health systems\, revealing gaps in diagnosis\, care coordination\, innovation\, data\, financing\, and access. More importantly\, they offer a powerful opportunity: \nIf health systems are designed to deliver for rare diseases\, they can deliver for everyone. \nDuring the 79th World Health Assembly\, Rare Diseases International (RDI)  will host a side-event in Geneva entitled “Rare Diseases: A Catalyst for Global Health Transformation“\, which will bring together policymakers\, patient advocates\, industry leaders\, researchers\, and global health institutions to explore how achieving UHC requires reaching those who are hardest to reach. \nThis side event builds on the landmark WHA Resolution “Rare Diseases; a global health priority for equity and inclusion” adopted at the 78th WHA\, which recognized rare diseases as a global health priority\, and called for the development of a 10-Year Global Action Plan on Rare Diseases (GAPRD). As we move toward implementation of these commitments\, it is important to reflect on the transversality of rare diseases and the importance of developing people-centered health systems. \nThis is about improving the lives of the over 300 million persons living with a rare diseases worldwide\, but it’s about scaling innovative solutions and designing systems that are more precise\, integrated\, person-centred\, and equitable. \n📍 Geneva Graduate Institute (Geneva\, Switzerland) \n🗓️ 20 May 2026\, 18:00–20:00 (CEST) (Cocktail reception to follow until 21:00 CEST) \nStay tuned for the agenda and speakers! We look forward to convening diverse voices to align on solutions\, scale impact\, and drive real change across rare diseases and global health.
URL:https://www.rarediseasesinternational.org/event/wha-79-side-event-rare-diseases-a-catalyst-for-global-health-transformation/
LOCATION:Geneva Graduate Institute\, Geneva\, Switzerland
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2026/04/wha-event.png
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DTSTART;VALUE=DATE:20260630
DTEND;VALUE=DATE:20260703
DTSTAMP:20260507T062240
CREATED:20260413T114117Z
LAST-MODIFIED:20260413T114117Z
UID:10000377-1782777600-1783036799@www.rarediseasesinternational.org
SUMMARY:RDI Membership Meeting: Nairobi\, Kenya
DESCRIPTION:RDI’s 2026 annual membership meeting will take place in person in Nairobi\, Kenya from 30 June – 2 July 2026. It will be co-hosted by Rare Disorders Kenya. \nThis event will bring our community together for an engaging programme\, featuring: \n\n\ninteractive workshops \n\n\ncapacity building sessions \n\n\nthe Aurora Awards \n\n\nthe RDI Annual General Assembly (AGM) \n\n\n 
URL:https://www.rarediseasesinternational.org/event/rdi-membership-meeting-nairobi-kenya/
LOCATION:Novotel Nairobi Westlands\, Nairobi\, Kenya
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2026/04/Membership-Meeting-2026-with-RDI-branding1.png
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