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X-WR-CALNAME:Rare Diseases International
X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20260101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260520T180000
DTEND;TZID=UTC:20260520T210000
DTSTAMP:20260611T203151
CREATED:20260413T113513Z
LAST-MODIFIED:20260413T113513Z
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SUMMARY:WHA 79 Side Event - Rare Diseases: a Catalyst for Global Health Transformation
DESCRIPTION:Rare diseases expose the stress points of our health systems\, revealing gaps in diagnosis\, care coordination\, innovation\, data\, financing\, and access. More importantly\, they offer a powerful opportunity: \nIf health systems are designed to deliver for rare diseases\, they can deliver for everyone. \nDuring the 79th World Health Assembly\, Rare Diseases International (RDI)  will host a side-event in Geneva entitled “Rare Diseases: A Catalyst for Global Health Transformation“\, which will bring together policymakers\, patient advocates\, industry leaders\, researchers\, and global health institutions to explore how achieving UHC requires reaching those who are hardest to reach. \nThis side event builds on the landmark WHA Resolution “Rare Diseases; a global health priority for equity and inclusion” adopted at the 78th WHA\, which recognized rare diseases as a global health priority\, and called for the development of a 10-Year Global Action Plan on Rare Diseases (GAPRD). As we move toward implementation of these commitments\, it is important to reflect on the transversality of rare diseases and the importance of developing people-centered health systems. \nThis is about improving the lives of the over 300 million persons living with a rare diseases worldwide\, but it’s about scaling innovative solutions and designing systems that are more precise\, integrated\, person-centred\, and equitable. \n📍 Geneva Graduate Institute (Geneva\, Switzerland) \n🗓️ 20 May 2026\, 18:00–20:00 (CEST) (Cocktail reception to follow until 21:00 CEST) \nStay tuned for the agenda and speakers! We look forward to convening diverse voices to align on solutions\, scale impact\, and drive real change across rare diseases and global health.
URL:https://www.rarediseasesinternational.org/event/wha-79-side-event-rare-diseases-a-catalyst-for-global-health-transformation/
LOCATION:Geneva Graduate Institute\, Geneva\, Switzerland
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2026/04/wha-event.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260618T140000
DTEND;TZID=UTC:20260618T150000
DTSTAMP:20260611T203151
CREATED:20260529T091133Z
LAST-MODIFIED:20260529T091133Z
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SUMMARY:Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis\, Treatment and Care
DESCRIPTION:Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis\, treatment\, and care remains out of reach for millions of people living with a rare disease. \nThis webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of financing mechanisms\, including venture philanthropy\, blended finance\, public-private partnerships\, solidarity funds\, and outcome-based models. Through real-world examples\, participants will gain insight into what makes these approaches work\, the conditions needed for success\, and how models can be adapted or combined across different health systems. \nBuilding on the momentum of the WHA Resolution on Rare Diseases\, the series aims to build a shared technical understanding of innovative financing models in the context of rare diseases\, assess their feasibility across different country settings\, and facilitate structured dialogue toward practical policy pathways.
URL:https://www.rarediseasesinternational.org/event/financing-rare-diseases-innovative-models-reshaping-access-to-diagnosis-treatment-and-care/
CATEGORIES:Hosted by RDI
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260630
DTEND;VALUE=DATE:20260703
DTSTAMP:20260611T203151
CREATED:20260413T114117Z
LAST-MODIFIED:20260413T114117Z
UID:10000377-1782777600-1783036799@www.rarediseasesinternational.org
SUMMARY:RDI Membership Meeting: Nairobi\, Kenya
DESCRIPTION:RDI’s 2026 annual membership meeting will take place in person in Nairobi\, Kenya from 30 June – 2 July 2026. It will be co-hosted by Rare Disorders Kenya. \nThis event will bring our community together for an engaging programme\, featuring: \n\n\ninteractive workshops \n\n\ncapacity building sessions \n\n\nthe Aurora Awards \n\n\nthe RDI Annual General Assembly (AGM) \n\n\n 
URL:https://www.rarediseasesinternational.org/event/rdi-membership-meeting-nairobi-kenya/
LOCATION:Novotel Nairobi Westlands\, Nairobi\, Kenya
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2026/04/Membership-Meeting-2026-with-RDI-branding1.png
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