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X-WR-CALNAME:Rare Diseases International
X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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BEGIN:VTIMEZONE
TZID:UTC
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TZOFFSETFROM:+0000
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TZNAME:UTC
DTSTART:20220101T000000
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TZID:Europe/Paris
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TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
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TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
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TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
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TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
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DTSTART:20220327T010000
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DTSTART:20221030T010000
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
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TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220915
DTEND;VALUE=DATE:20220917
DTSTAMP:20260508T073105
CREATED:20220907T125708Z
LAST-MODIFIED:20220907T125708Z
UID:10000283-1663200000-1663372799@www.rarediseasesinternational.org
SUMMARY:1st WORLD PATIENTS CONFERENCE
DESCRIPTION:The 1st WORLD PATIENTS CONFERENCE\, organised by The World Patients Alliance\,  will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-2022-10-15/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220914T000000
DTEND;TZID=UTC:20220917T000000
DTSTAMP:20260508T073105
CREATED:20220831T075024Z
LAST-MODIFIED:20220831T075338Z
UID:10000281-1663113600-1663372800@www.rarediseasesinternational.org
SUMMARY:2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder
DESCRIPTION:Taking place in Rome\, Italy\, and with a virtual attendance option for those around the world\, The International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) is a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed.
URL:https://www.rarediseasesinternational.org/event/2022-symposium-on-the-ehlers-danlos-syndromes/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220907T120000
DTEND;TZID=Europe/Paris:20220907T130000
DTSTAMP:20260508T073105
CREATED:20220824T113029Z
LAST-MODIFIED:20220824T113029Z
UID:10000280-1662552000-1662555600@www.rarediseasesinternational.org
SUMMARY:Small Group Discussion - Advocating for a National Plan
DESCRIPTION:Rare Voices Australia (RVA) will host a small group discussion on lessons learned and successes on the road to advocating for Australia’s national plan. \nThe meeting is particularly designed for patient advocates. Please be ready to ask questions and be part of a conversation on this important topic.\n\nONLINE
URL:https://www.rarediseasesinternational.org/event/rva-small-group-discussion/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220807
DTEND;VALUE=DATE:20220810
DTSTAMP:20260508T073105
CREATED:20220721T093100Z
LAST-MODIFIED:20220721T093725Z
UID:10000260-1659830400-1660089599@www.rarediseasesinternational.org
SUMMARY:Rare Neuroimmune Disorders Symposium
DESCRIPTION:The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. This event focuses on those with acute disseminated encephalomyelitis (ADEM)\, acute flaccid myelitis (AFM)\, MOG antibody disease (MOGAD)\, neuromyelitis optica spectrum disorder (NMOSD)\, optic neuritis (ON)\, and transverse myelitis (TM)\, as well as their families\, care partners\, and medical professionals. \nHybrid – Online and Los Angeles\, CA\, USA
URL:https://www.rarediseasesinternational.org/event/rare-neuroimmune-disorders-symposium-2022-10-7/
LOCATION:Hilton Los Angeles Airport\, 5711 West Century Boulevard Los Angeles\, Los Angeles\, CA 90045\, United States
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220706T183000
DTEND;TZID=Europe/Paris:20220706T210000
DTSTAMP:20260508T073105
CREATED:20220505T160820Z
LAST-MODIFIED:20220506T091917Z
UID:10000205-1657132200-1657141200@www.rarediseasesinternational.org
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:The Cambridge Rare Disease Showcase\, a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs\, is back for the first time in two years!
URL:https://www.rarediseasesinternational.org/event/cambridge-rd-showcase-care-2022-7/
LOCATION:Clayton Hotel\, Cambridge\, 27-29 Station Rd\, Cambridge\, CB1 2FB\, United Kingdom
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220627
DTEND;VALUE=DATE:20220702
DTSTAMP:20260508T073105
CREATED:20220107T154403Z
LAST-MODIFIED:20220121T124902Z
UID:10000088-1656288000-1656719999@www.rarediseasesinternational.org
SUMMARY:European Conferences on Rare Diseases and Orphan Drugs (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/ecrd-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/01/Website-Event-Image-13.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220625
DTEND;VALUE=DATE:20220630
DTSTAMP:20260508T073105
CREATED:20220516T145902Z
LAST-MODIFIED:20220516T150335Z
UID:10000252-1656115200-1656547199@www.rarediseasesinternational.org
SUMMARY:HTAi Annual Meeting 2022 (Hybrid Event)
DESCRIPTION:The 2022 Annual Meeting will offer a hybrid event with on-site and virtual access! Discussions will focus on Lifecycle Approach: Coming Together to Make it Happen.
URL:https://www.rarediseasesinternational.org/event/htai-annual-meeting-2022-6/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-14.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220616T140000
DTEND;TZID=UTC:20220616T170000
DTSTAMP:20260508T073105
CREATED:20220425T155554Z
LAST-MODIFIED:20220426T094211Z
UID:10000111-1655388000-1655398800@www.rarediseasesinternational.org
SUMMARY:RDI Membership Meeting (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-membership-meeting-2022-6/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220615T140000
DTEND;TZID=UTC:20220615T160000
DTSTAMP:20260508T073105
CREATED:20220425T155154Z
LAST-MODIFIED:20220425T162350Z
UID:10000110-1655301600-1655308800@www.rarediseasesinternational.org
SUMMARY:RDI General Assembly
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-general-assembly-2022-4-2/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220608
DTEND;VALUE=DATE:20220610
DTSTAMP:20260508T073105
CREATED:20220506T094628Z
LAST-MODIFIED:20220506T094914Z
UID:10000213-1654646400-1654819199@www.rarediseasesinternational.org
SUMMARY:Rare Drug Strategy Conference
DESCRIPTION:This two-day conference brings together the stakeholders and the learnings from all CORD and others’ consultations.
URL:https://www.rarediseasesinternational.org/event/rare-drug-strategy-2022-6/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220531T090000
DTEND;TZID=Europe/Paris:20220531T180000
DTSTAMP:20260508T073105
CREATED:20220512T165800Z
LAST-MODIFIED:20220512T170141Z
UID:10000237-1653987600-1654020000@www.rarediseasesinternational.org
SUMMARY:Colloque Scientifique Annuel 2022\, Fondation Maladies Rares
DESCRIPTION:Each year\, Plateforme Maladies Rares are organising a conference bringing together the major players in rare disease research.
URL:https://www.rarediseasesinternational.org/event/colloque-scientifiques-foundation-maladies-rares-2022-5/
LOCATION:College de France\, 11 Place Marcelin Berthelot\, Paris\, 75231\, France
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-10.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220524T183000
DTEND;TZID=UTC:20220524T203000
DTSTAMP:20260508T073105
CREATED:20220428T105319Z
LAST-MODIFIED:20220428T110013Z
UID:10000197-1653417000-1653424200@www.rarediseasesinternational.org
SUMMARY:RDI Informal Side-Event  75th World Health Assembly
DESCRIPTION:Networking experts\, centers of expertise and patient organizations to Strengthen Health Systems for Rare Diseases
URL:https://www.rarediseasesinternational.org/event/informal-side-event/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220522
DTEND;VALUE=DATE:20220523
DTSTAMP:20260508T073105
CREATED:20220512T170839Z
LAST-MODIFIED:20220512T170839Z
UID:10000241-1653177600-1653263999@www.rarediseasesinternational.org
SUMMARY:Walk the Talk: Health For All Challenge\, WHO
DESCRIPTION:The World Health Organization will organize the 3rd edition in Geneva of the “Walk the Talk: Health For All Challenge” on Sunday 22 May\, on the morning of the World Health Assembly. \nThis in-person event will invite participants to run or walk over two routes: 3 km and 4.2 km. People of all ages and abilities will start at Place des Nations from 8.30am. \nPeople around the world are invited to take part in the event by tracking their performances through a dedicated app. By registering\, participants will receive a login to take part-in anywhere in the world. More information is coming soon.
URL:https://www.rarediseasesinternational.org/event/walk-the-talk-who-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-11.png
ORGANIZER;CN="The World Health Organization":MAILTO:https://www.who.int/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220519T190000
DTEND;TZID=Europe/Paris:20220519T203000
DTSTAMP:20260508T073105
CREATED:20220516T144718Z
LAST-MODIFIED:20220517T075402Z
UID:10000248-1652986800-1652992200@www.rarediseasesinternational.org
SUMMARY:How Patient Involvement is Making a Difference in HTA: PCIG Webinar
DESCRIPTION:HTAi’s Patient and Citizen Involvement in HTA Interest Group (PCIG) will be looking at “Stakeholders’ perspectives of impact in patient involvement in HTA.” The project team collects and evaluates multi-stakeholder perspectives about the perceived difference patient involvement has made in specific HTAs or HTA processes. \nThe team and invited speakers will share case examples of impact from different stakeholders’ perspectives and review the preliminary findings from this research\, highlighting the various domains and types of impact identified. The webinar will also provide an opportunity to discuss good practice and encourage reflection on patient involvement processes.
URL:https://www.rarediseasesinternational.org/event/patient-involvement-rare-deases-webinar-2022-5/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-15.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220520
DTSTAMP:20260508T073105
CREATED:20220506T100033Z
LAST-MODIFIED:20220506T100238Z
UID:10000217-1652745600-1653004799@www.rarediseasesinternational.org
SUMMARY:Online workshop: Understanding access and reimbursement
DESCRIPTION:This workshop will outline the basics of access and reimbursement: what it means\, when it happens\, and who is involved. It will also explore the key ways in which patient groups can contribute to the process and what should they be prepared for.
URL:https://www.rarediseasesinternational.org/event/woekshop-access-reimbursement-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220518
DTSTAMP:20260508T073105
CREATED:20220516T084441Z
LAST-MODIFIED:20220516T084814Z
UID:10000244-1652745600-1652831999@www.rarediseasesinternational.org
SUMMARY:Stakeholders Workshop : A call for action on Rare Diseases (closed meeting)
DESCRIPTION:Rare Disorders Kenya\, together with Kenya Medical Research Institute (KEMRI)-CPHR and Cambridge Africa are holding a stakeholders workshop on rare diseases in Kenya. \nTheme: A call for action on Rare Diseases
URL:https://www.rarediseasesinternational.org/event/workshop-call-for-action-kenya-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-12.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220513
DTEND;VALUE=DATE:20220516
DTSTAMP:20260508T073105
CREATED:20220506T101026Z
LAST-MODIFIED:20220506T101228Z
UID:10000221-1652400000-1652659199@www.rarediseasesinternational.org
SUMMARY:Congreso Internacional Duchenne Parent Project España
DESCRIPTION:International congress to facilitate families and those affected to provide information and share experiences to promote support and learn about the different aspects of Duchenne and Becker Muscular Dystrophy.
URL:https://www.rarediseasesinternational.org/event/congreso-internatcional-duchenne-2022-5/
LOCATION:Novotel Madrid Center\, Madrid\, Spain
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220513
DTEND;VALUE=DATE:20220514
DTSTAMP:20260508T073105
CREATED:20220506T092645Z
LAST-MODIFIED:20220506T092645Z
UID:10000209-1652400000-1652486399@www.rarediseasesinternational.org
SUMMARY:Improving Rare Disease Diagnostics & Care (Online)
DESCRIPTION:Join The Hill for a discussion on improving the diagnostic journey for the 30 million Americans living with rare disease.
URL:https://www.rarediseasesinternational.org/event/diagnostic-care-rd-2022-5/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220509T000000
DTEND;TZID=UTC:20220509T000000
DTSTAMP:20260508T073105
CREATED:20220509T112421Z
LAST-MODIFIED:20220509T112421Z
UID:10000229-1652054400-1652054400@www.rarediseasesinternational.org
SUMMARY:UIA Associations Round Table Brussels 2022
DESCRIPTION:The UIA Round Tables provide an opportunity to learn through networking and through practice\, to meet other international associations and share experience and knowledge to help you run your organization better.
URL:https://www.rarediseasesinternational.org/event/uia-round-table-brussels-2022-5/
LOCATION:Marriott Grand Place\, Brussels\, Belgium
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220508
DTEND;VALUE=DATE:20220512
DTSTAMP:20260508T073105
CREATED:20220506T102318Z
LAST-MODIFIED:20220506T102454Z
UID:10000225-1651968000-1652313599@www.rarediseasesinternational.org
SUMMARY:WFH 2022 WORLD CONGRESS
DESCRIPTION:The World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) will welcome the global bleeding disorders community to the WFH 2022 World Congress—a major hybrid event of the international bleeding disorders community. The in-person component of the hybrid Congress will take place in Montreal\, Canada\, with select sessions being broadcast through our virtual platform.
URL:https://www.rarediseasesinternational.org/event/wfh-world-congress-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20220507T090000
DTEND;TZID=Europe/Helsinki:20220507T180000
DTSTAMP:20260508T073105
CREATED:20220426T104133Z
LAST-MODIFIED:20220426T104649Z
UID:10000193-1651914000-1651946400@www.rarediseasesinternational.org
SUMMARY:Fabry Expert Meeting 2022 (Online)
DESCRIPTION:Every year\, Fabry International Network brings patients together where they will receive valuable\, up-to-date information about Fabry disease as well as on-going clinical trial updates and new trial opportunities.
URL:https://www.rarediseasesinternational.org/event/fabry-expert-meeting-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20220506T120000
DTEND;TZID=Europe/Helsinki:20220506T130000
DTSTAMP:20260508T073105
CREATED:20220503T095521Z
LAST-MODIFIED:20220504T091057Z
UID:10000201-1651838400-1651842000@www.rarediseasesinternational.org
SUMMARY:IFSBH MEMBERS TRAINING : From local to global – How to influence international actions through national advocacy (Online)
DESCRIPTION:The next IF members training on policy and advocacy will take place on May 6 2022 at 12 PM Brussels time. \nA session to discuss the role of civil society in shaping the activities of international organisations and how campaigns for actions are designed and implemented. \nDolores Cvitičanin – Public Affairs Manager at RDI – will speak further on how to use a UN Resolution on a National Advocacy level.\n\nParticipation is limited to two participants from each IF member association\n 
URL:https://www.rarediseasesinternational.org/event/ifsbh-membership-training-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220506T090000
DTEND;TZID=UTC:20220506T160000
DTSTAMP:20260508T073105
CREATED:20220426T102945Z
LAST-MODIFIED:20220503T073323Z
UID:10000189-1651827600-1651852800@www.rarediseasesinternational.org
SUMMARY:4th Symposium on Birth Defects and Rare Diseases (Hybrid)
DESCRIPTION:Theme: “Patient Centricity: Key to Achieving Universal Health and Inclusion” \nMary Wang (Science Policy Manager\, Rare Diseases International) and Matt Bolz-Johson (Programme Director – Collaborative Global Network for Rare Diseases\, Rare Diseases International) will speak about regional and global collaborative initiatives. 
URL:https://www.rarediseasesinternational.org/event/birth-defects-symposium-2022-5/
LOCATION:Kumasi\, Ghana
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220427
DTEND;VALUE=DATE:20220430
DTSTAMP:20260508T073105
CREATED:20220426T095431Z
LAST-MODIFIED:20220426T101347Z
UID:10000185-1651017600-1651276799@www.rarediseasesinternational.org
SUMMARY:IPIC 5th Edition
DESCRIPTION:Meet up with world-renowned experts\, and many other colleagues and stakeholders\, with an interest in primary immunodeficiencies/Inborn Errors of Immunity.
URL:https://www.rarediseasesinternational.org/event/ipic-2022-4/
LOCATION:Algarve Congress Center\, Vilamoura\, Portugal
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220427
DTEND;VALUE=DATE:20220430
DTSTAMP:20260508T073105
CREATED:20220405T121238Z
LAST-MODIFIED:20220425T162748Z
UID:10000102-1651017600-1651276799@www.rarediseasesinternational.org
SUMMARY:Diaphragmatic Congenital Hernia International Symposium 2022 (Hybrid)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/cdh2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Diaphragmatic-Congenital-Hernia-International-Symposium-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220423T000000
DTEND;TZID=America/New_York:20220423T000000
DTSTAMP:20260508T073105
CREATED:20220419T063512Z
LAST-MODIFIED:20220419T063616Z
UID:10000106-1650672000-1650672000@www.rarediseasesinternational.org
SUMMARY:Cure CMD Young Adult Educational Transitions Webinar
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/cure-cmd-webinar/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-10.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220417
DTEND;VALUE=DATE:20220418
DTSTAMP:20260508T073105
CREATED:20211216T121221Z
LAST-MODIFIED:20211216T121221Z
UID:10000144-1650153600-1650239999@www.rarediseasesinternational.org
SUMMARY:Journée mondiale de l'hémophilie
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/journee-mondiale-de-lhemophilie/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220330T160000
DTEND;TZID=UTC:20220330T160000
DTSTAMP:20260508T073105
CREATED:20220317T083035Z
LAST-MODIFIED:20220317T083035Z
UID:10000178-1648656000-1648656000@www.rarediseasesinternational.org
SUMMARY:RDI Webinar - Essential List of Medicinal Products for Rare Diseases
DESCRIPTION:Open only to RDI Member Organisations
URL:https://www.rarediseasesinternational.org/event/ecrd-2022-3/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/03/Website-Event-Image-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220317T150000
DTEND;TZID=Europe/Paris:20220317T160000
DTSTAMP:20260508T073105
CREATED:20220317T080455Z
LAST-MODIFIED:20220317T080539Z
UID:10000174-1647529200-1647532800@www.rarediseasesinternational.org
SUMMARY:Webinar - Plain Language Summaries
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/ecrd-2022-2/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/03/Website-Event-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260508T073105
CREATED:20220121T125602Z
LAST-MODIFIED:20220211T110402Z
UID:10000162-1646006400-1646092799@www.rarediseasesinternational.org
SUMMARY:Global Rare Disease Day Event - World Expo Dubai/ONLINE
DESCRIPTION:Register
URL:https://www.rarediseasesinternational.org/event/global-rare-disease-day/
CATEGORIES:Global Event,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/01/Website-Event-Image-3.png
END:VEVENT
END:VCALENDAR