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X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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TZID:Europe/Paris
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DTSTART:20220327T010000
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TZOFFSETTO:+0100
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DTSTART:20221030T010000
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DTSTART:20220101T000000
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20221117T000000
DTEND;TZID=Europe/Paris:20221117T000000
DTSTAMP:20260507T101221
CREATED:20221116T101610Z
LAST-MODIFIED:20221116T101610Z
UID:10000303-1668643200-1668643200@www.rarediseasesinternational.org
SUMMARY:Cobertura Universal de Salud para las enfermedades raras: Preguntas clave
DESCRIPTION:Taller previo a la conferencia\n17 de noviembre de 2022\n11:00-12:15 GMT-3 / 15:00-16:15 CET\nVirtual event → Haga clic aquí para participar : bit.ly/3O8nnVP (no es necesario registrarse antes) \n¡Complete la encuesta antes del taller! → https://forms.gle/z9RL5vSeUftpdeAL7
URL:https://www.rarediseasesinternational.org/event/cus-enfermedades-raras-2022-11-17/
CATEGORIES:Hosted by RDI,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221116T000000
DTEND;TZID=UTC:20221119T000000
DTSTAMP:20260507T101221
CREATED:20220914T113455Z
LAST-MODIFIED:20220914T113455Z
UID:10000286-1668556800-1668816000@www.rarediseasesinternational.org
SUMMARY:International Scientific Conference on Albinism (ISCA)
DESCRIPTION:ISCA is a unique scientific conference organized by the Global Albinism Alliance and shaped to be a global forum to improve the health of those with albinism. \n(Online Conference)
URL:https://www.rarediseasesinternational.org/event/isca-2022/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-4.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221114
DTEND;VALUE=DATE:20221118
DTSTAMP:20260507T101221
CREATED:20220919T162247Z
LAST-MODIFIED:20220919T163928Z
UID:10000291-1668384000-1668729599@www.rarediseasesinternational.org
SUMMARY:World Orphan Drug Congress Europe 2022 (WODC)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/wodc-europe-2022/
LOCATION:MELIA SITGES HOTEL\, SITGES\, Barcelona\, Spain
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-14.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221101
DTEND;VALUE=DATE:20221102
DTSTAMP:20260507T101221
CREATED:20220923T095305Z
LAST-MODIFIED:20220923T095305Z
UID:10000295-1667260800-1667347199@www.rarediseasesinternational.org
SUMMARY:World Acromegaly Awareness Day 2022
DESCRIPTION:Annual Awareness Day on November 1st\, to raise awareness for patients diagnosed with Acromegaly. \nThe goal is to help people with this rare endocrine disease get the timely diagnosis and effective treatment they need and deserve.
URL:https://www.rarediseasesinternational.org/event/world-acromegaly-day-2022611-1/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-18.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221025
DTEND;VALUE=DATE:20221026
DTSTAMP:20260507T101221
CREATED:20220928T142118Z
LAST-MODIFIED:20220928T142118Z
UID:10000301-1666656000-1666742399@www.rarediseasesinternational.org
SUMMARY:World Spina Bifida and Hydrocephalus Day 2022
DESCRIPTION:The International Federation for Spina Bifida and Hydrocephalus warmly INVITES persons with Spina Bifida and Hydrocephalus from all over the world as well as all interested parties to celebrate the 10th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) on the topic of “Elevate Your Voice” on October 25 2022. Various activities will take place around the WSBHD22 throughout the month of October. All events\, materials\, information and latest updates are available on www.worldspinabifidahydrocephalusday.com
URL:https://www.rarediseasesinternational.org/event/world-spina-bifida-and-hydrocephalus-day-2022-10-25/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-28.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221015
DTEND;VALUE=DATE:20221017
DTSTAMP:20260507T101221
CREATED:20220919T150550Z
LAST-MODIFIED:20220919T150550Z
UID:10000290-1665792000-1665964799@www.rarediseasesinternational.org
SUMMARY:The 1st World Patients Conference in Rome (Italy)
DESCRIPTION:WPA’s 1st World Patients Conference will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-rome-2022-10/
LOCATION:Crowne Plaza Rome – St. Peter’s\, Italy
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-13.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20221012T140000
DTEND;TZID=Europe/Helsinki:20221012T150000
DTSTAMP:20260507T101221
CREATED:20220922T161142Z
LAST-MODIFIED:20220922T161142Z
UID:10000294-1665583200-1665586800@www.rarediseasesinternational.org
SUMMARY:#ACT4RARE Toolkit - NEW UN Resolution Toolkit Launch (ONLINE)
DESCRIPTION:The UN Resolution on Persons Living with a Rare Disease was adopted in December 2021. Now what? How can you use it? How can you tell you country’s decision makers to act? \nJoin us for a presentation of the #ACT4RARE Toolkit to raise awareness and call action in the UN Resolution. \nThe #ACT4RARE toolkit will include :\n– A summary of the actions all countries have agreed to take\n– Template letters for policymakers\n– Social Media kit – with post images and GIFs\nAnd more !
URL:https://www.rarediseasesinternational.org/event/act4rar-toolkit-launch-2022-10-12/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-17.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221012
DTEND;VALUE=DATE:20221016
DTSTAMP:20260507T101221
CREATED:20220721T094439Z
LAST-MODIFIED:20220721T113906Z
UID:10000264-1665532800-1665878399@www.rarediseasesinternational.org
SUMMARY:IPOPI’s XVII Global Patients’ Meeting 2022 (In-Person)
DESCRIPTION:IPOPI‘s National Member Organisations are all invited to the XVII Global Patients’ Meeting in Gothenburg\, Sweden\, 12-15 October 2022! Join us for an opportunity to finally meet up with the global PID community in person\, and enjoy three days of educational sessions presenting the latest medical advances on primary immunodeficiencies\, as well as fruitful discussions and skills-building opportunities.
URL:https://www.rarediseasesinternational.org/event/ipopi-global-patients-meeting-2022-10-12/
LOCATION:Gothenburg\, Sweden
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260507T101221
CREATED:20220228T124144Z
LAST-MODIFIED:20220721T130025Z
UID:10000170-1665360000-1665446399@www.rarediseasesinternational.org
SUMMARY:Drug Repurposing for Rare Diseases 2022
DESCRIPTION:Drug Repurposing for Rare Diseases highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. \nAn event unique in its collaborative and multi-stakeholder focus\, we bring patient groups\, researchers and industry professionals together to showcase excellent examples of rare repurposing.
URL:https://www.rarediseasesinternational.org/event/drug-repurposing-for-rare-diseases-2022/
LOCATION:America Square Conference Centre\, London\, 17\, One Crosswall\, America Square\,\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/02/Website-Event-Image-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221010
DTSTAMP:20260507T101221
CREATED:20220923T153052Z
LAST-MODIFIED:20220923T153611Z
UID:10000297-1665100800-1665359999@www.rarediseasesinternational.org
SUMMARY:2022 Rare Neuroimmune Disorders Symposium
DESCRIPTION:The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. On October 7 – 9\, 2022\, the RNDS will host a hybrid event—participants can choose to attend either in-person\, virtually via online streaming\, or partly in-person and partly online. An online pre-RNDS will be hosted on September 9\, 2022\, to dive deeper into topics related to your rare neuroimmune disorder and start meeting others that will attend the RNDS in October. We remain committed to hosting a conference that empowers our rare disease community to become better advocates for themselves and provides valuable resources to keep learning about these rare conditions. For the online-only registration: https://hopin.com/events/2022-rnds. \n  \nOnline and In person
URL:https://www.rarediseasesinternational.org/event/rare-neuroimmune-disorders-symposium-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-21.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220929T180000
DTEND;TZID=UTC:20220929T180000
DTSTAMP:20260507T101221
CREATED:20220927T205224Z
LAST-MODIFIED:20220927T205224Z
UID:10000298-1664474400-1664474400@www.rarediseasesinternational.org
SUMMARY:Science Webinar "Knowledge is power: The urgent need to internationalize databases for rare disease patients"
DESCRIPTION:There are multiple barriers to rare disease diagnosis\, including access to testing technologies\, availability of knowledgeable health care providers\, and lack of uniformity of the phenotype for a given genotype or disease-causing agent. These barriers significantly lengthen the time between detection of a rare disease and its diagnosis\, aptly called the diagnostic odyssey. \nThe collection and sharing of accurate\, standardized data are key priorities in shortening the diagnostic odyssey. \nDuring this webinar\, the panelists will: \n\nOutline current challenges in creating and maintaining global rare disease patient databases\nShare examples of current paradigms shown to be effective and beneficial\nDiscuss what is needed to improve current systems and make truly useful patient databases a reality.\n\nScience website:  https://www.science.org/content/webinar/knowledge-power-urgent-need-internationalize-databases-rare-disease-patients \nRegistration page:  https://view6.workcast.net/register?cpak=5263952065562539
URL:https://www.rarediseasesinternational.org/event/science-webinar-internationalize-database-2022-09-29/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220929T090000
DTEND;TZID=UTC:20220929T100000
DTSTAMP:20260507T101221
CREATED:20220927T214018Z
LAST-MODIFIED:20220927T214018Z
UID:10000300-1664442000-1664445600@www.rarediseasesinternational.org
SUMMARY:UHC Day campaign kick-off call
DESCRIPTION:Join us for a UHC Day campaign kick-off call on 29 September at 9 a.m. ET\, where we will reveal this year’s UHC Day theme\, share opportunities to engage with this year’s campaign\, and discuss exciting new #HealthForAll partnerships.
URL:https://www.rarediseasesinternational.org/event/uhc-day-campaign-kick-off-call-2022-09-29/
CATEGORIES:Global Event,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-27.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220928T083000
DTEND;TZID=UTC:20220928T093000
DTSTAMP:20260507T101221
CREATED:20220920T084936Z
LAST-MODIFIED:20220920T085044Z
UID:10000293-1664353800-1664357400@www.rarediseasesinternational.org
SUMMARY:Shining light into the black box: Examples of price transparency measures in non-health sectors - Webinar
DESCRIPTION:The webinar will consider some market characteristics (e.g. information asymmetry and market power) common in different sectors\, with a view to exploring thoughts about the roles of governments in managing the transparency of pharmaceutical prices.
URL:https://www.rarediseasesinternational.org/event/who-webinar-access-2022-09-28/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-16.png
ORGANIZER;CN="The World Health Organization":MAILTO:https://www.who.int/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220927T140000
DTEND;TZID=UTC:20220927T150000
DTSTAMP:20260507T101221
CREATED:20220909T141529Z
LAST-MODIFIED:20220909T141529Z
UID:10000284-1664287200-1664290800@www.rarediseasesinternational.org
SUMMARY:Webinar on ICD-11 use for Rare Diseases
DESCRIPTION:As part of WHO ICD-11 webinar series\, the Classifications and Terminologies Unit in collaboration with the Healthier Populations Division at WHO and Rare Diseases International is organising an ICD-11 webinar that will be held on September 27th\, 2022. ONLINE. \nAn Event co-organised by the WHO and Rare Diseases International.
URL:https://www.rarediseasesinternational.org/event/who-icd11-rdi-webinar-2022-09-27/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-10.png
ORGANIZER;CN="The World Health Organization":MAILTO:https://www.who.int/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220927T000000
DTEND;TZID=UTC:20220930T000000
DTSTAMP:20260507T101221
CREATED:20220923T101733Z
LAST-MODIFIED:20220923T101733Z
UID:10000296-1664236800-1664496000@www.rarediseasesinternational.org
SUMMARY:Primeras Jornadas Iberoamericanas de los Trastornos Hereditarios del Tejido Conectivo
DESCRIPTION:Burgos\, España. Del 27 al 30 de septiembre de 2022. \nEl programa contempla conferencias\, talleres y mesas redondas\, y será un lugar de encuentro entre las asociaciones de pacientes de los THTC en Latinoamérica y España. \n\nLema: Tejiendo redes.\nhashtag: #THTC2022\nweb: https://conectiva.lat/evento/THTC2022\n\n  \n 
URL:https://www.rarediseasesinternational.org/event/conectiva-thtc-event-2022-09/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-19.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220926T103000
DTEND;TZID=UTC:20220926T130000
DTSTAMP:20260507T101221
CREATED:20220919T140945Z
LAST-MODIFIED:20220919T140945Z
UID:10000287-1664188200-1664197200@www.rarediseasesinternational.org
SUMMARY:Enfermedades Raras: Presente y Futuro
DESCRIPTION: 
URL:https://www.rarediseasesinternational.org/event/enfermemdades-raras-presente-y-futuro-2022-09-26/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-11.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220926
DTEND;VALUE=DATE:20220927
DTSTAMP:20260507T101221
CREATED:20220721T123247Z
LAST-MODIFIED:20220721T123247Z
UID:10000272-1664150400-1664236799@www.rarediseasesinternational.org
SUMMARY:International Human Gene Therapy Conference
DESCRIPTION:The aim of the International Human Gene Therapy Conference is to bring together all the key stakeholders interested in genetics and gene therapy to share and discuss advances and developments in these fields. Therefore we aimed at assisting academicians\, business executives\, researchers\, scientists\, manufacturers\, gene therapy companies\, communities\, and agencies to keep on new developments in their specific fields and to join forces in finding alternative solutions. \nGene Therapy Conference is a unique way to approach and encourage a dialogue between speakers and delegates through its well-planned agenda with a series of talks\, poster presentations\, panel discussions and networking events that will keep participants engaged in learning. This will help rising scientific queries and provide solutions for a smarter and more advanced future.
URL:https://www.rarediseasesinternational.org/event/international-human-gene-therapy-conference-2022/
LOCATION:Melbourne Convention and Exhibition Centre\, Melbourne\, Australia
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220921T170000
DTEND;TZID=UTC:20220921T190000
DTSTAMP:20260507T101221
CREATED:20220919T145205Z
LAST-MODIFIED:20220919T145205Z
UID:10000289-1663779600-1663786800@www.rarediseasesinternational.org
SUMMARY:Investing in Health Systems strengthening for Universal Health Coverage through a primary health care oriented approach
DESCRIPTION:The 3rd annual ministerial meeting on Universal Health Coverage: Investing in #health systems strengthening for UHC through a primary healthcare oriented approach.  \nONLINE
URL:https://www.rarediseasesinternational.org/event/uhc2030-who-event-2022-09-21/
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-12.png
ORGANIZER;CN="The World Health Organization":MAILTO:https://www.who.int/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220915
DTEND;VALUE=DATE:20220917
DTSTAMP:20260507T101221
CREATED:20220907T125708Z
LAST-MODIFIED:20220907T125708Z
UID:10000283-1663200000-1663372799@www.rarediseasesinternational.org
SUMMARY:1st WORLD PATIENTS CONFERENCE
DESCRIPTION:The 1st WORLD PATIENTS CONFERENCE\, organised by The World Patients Alliance\,  will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-2022-10-15/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220914T000000
DTEND;TZID=UTC:20220917T000000
DTSTAMP:20260507T101221
CREATED:20220831T075024Z
LAST-MODIFIED:20220831T075338Z
UID:10000281-1663113600-1663372800@www.rarediseasesinternational.org
SUMMARY:2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder
DESCRIPTION:Taking place in Rome\, Italy\, and with a virtual attendance option for those around the world\, The International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) is a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed.
URL:https://www.rarediseasesinternational.org/event/2022-symposium-on-the-ehlers-danlos-syndromes/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220907T120000
DTEND;TZID=Europe/Paris:20220907T130000
DTSTAMP:20260507T101221
CREATED:20220824T113029Z
LAST-MODIFIED:20220824T113029Z
UID:10000280-1662552000-1662555600@www.rarediseasesinternational.org
SUMMARY:Small Group Discussion - Advocating for a National Plan
DESCRIPTION:Rare Voices Australia (RVA) will host a small group discussion on lessons learned and successes on the road to advocating for Australia’s national plan. \nThe meeting is particularly designed for patient advocates. Please be ready to ask questions and be part of a conversation on this important topic.\n\nONLINE
URL:https://www.rarediseasesinternational.org/event/rva-small-group-discussion/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220807
DTEND;VALUE=DATE:20220810
DTSTAMP:20260507T101221
CREATED:20220721T093100Z
LAST-MODIFIED:20220721T093725Z
UID:10000260-1659830400-1660089599@www.rarediseasesinternational.org
SUMMARY:Rare Neuroimmune Disorders Symposium
DESCRIPTION:The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. This event focuses on those with acute disseminated encephalomyelitis (ADEM)\, acute flaccid myelitis (AFM)\, MOG antibody disease (MOGAD)\, neuromyelitis optica spectrum disorder (NMOSD)\, optic neuritis (ON)\, and transverse myelitis (TM)\, as well as their families\, care partners\, and medical professionals. \nHybrid – Online and Los Angeles\, CA\, USA
URL:https://www.rarediseasesinternational.org/event/rare-neuroimmune-disorders-symposium-2022-10-7/
LOCATION:Hilton Los Angeles Airport\, 5711 West Century Boulevard Los Angeles\, Los Angeles\, CA 90045\, United States
CATEGORIES:Global Event
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220706T183000
DTEND;TZID=Europe/Paris:20220706T210000
DTSTAMP:20260507T101221
CREATED:20220505T160820Z
LAST-MODIFIED:20220506T091917Z
UID:10000205-1657132200-1657141200@www.rarediseasesinternational.org
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:The Cambridge Rare Disease Showcase\, a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs\, is back for the first time in two years!
URL:https://www.rarediseasesinternational.org/event/cambridge-rd-showcase-care-2022-7/
LOCATION:Clayton Hotel\, Cambridge\, 27-29 Station Rd\, Cambridge\, CB1 2FB\, United Kingdom
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220627
DTEND;VALUE=DATE:20220702
DTSTAMP:20260507T101221
CREATED:20220107T154403Z
LAST-MODIFIED:20220121T124902Z
UID:10000088-1656288000-1656719999@www.rarediseasesinternational.org
SUMMARY:European Conferences on Rare Diseases and Orphan Drugs (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/ecrd-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/01/Website-Event-Image-13.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220625
DTEND;VALUE=DATE:20220630
DTSTAMP:20260507T101221
CREATED:20220516T145902Z
LAST-MODIFIED:20220516T150335Z
UID:10000252-1656115200-1656547199@www.rarediseasesinternational.org
SUMMARY:HTAi Annual Meeting 2022 (Hybrid Event)
DESCRIPTION:The 2022 Annual Meeting will offer a hybrid event with on-site and virtual access! Discussions will focus on Lifecycle Approach: Coming Together to Make it Happen.
URL:https://www.rarediseasesinternational.org/event/htai-annual-meeting-2022-6/
CATEGORIES:Global Event
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220616T140000
DTEND;TZID=UTC:20220616T170000
DTSTAMP:20260507T101221
CREATED:20220425T155554Z
LAST-MODIFIED:20220426T094211Z
UID:10000111-1655388000-1655398800@www.rarediseasesinternational.org
SUMMARY:RDI Membership Meeting (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-membership-meeting-2022-6/
CATEGORIES:Hosted by RDI Member
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220615T140000
DTEND;TZID=UTC:20220615T160000
DTSTAMP:20260507T101221
CREATED:20220425T155154Z
LAST-MODIFIED:20220425T162350Z
UID:10000110-1655301600-1655308800@www.rarediseasesinternational.org
SUMMARY:RDI General Assembly
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-general-assembly-2022-4-2/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220608
DTEND;VALUE=DATE:20220610
DTSTAMP:20260507T101221
CREATED:20220506T094628Z
LAST-MODIFIED:20220506T094914Z
UID:10000213-1654646400-1654819199@www.rarediseasesinternational.org
SUMMARY:Rare Drug Strategy Conference
DESCRIPTION:This two-day conference brings together the stakeholders and the learnings from all CORD and others’ consultations.
URL:https://www.rarediseasesinternational.org/event/rare-drug-strategy-2022-6/
CATEGORIES:Hosted by RDI Member
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220531T090000
DTEND;TZID=Europe/Paris:20220531T180000
DTSTAMP:20260507T101221
CREATED:20220512T165800Z
LAST-MODIFIED:20220512T170141Z
UID:10000237-1653987600-1654020000@www.rarediseasesinternational.org
SUMMARY:Colloque Scientifique Annuel 2022\, Fondation Maladies Rares
DESCRIPTION:Each year\, Plateforme Maladies Rares are organising a conference bringing together the major players in rare disease research.
URL:https://www.rarediseasesinternational.org/event/colloque-scientifiques-foundation-maladies-rares-2022-5/
LOCATION:College de France\, 11 Place Marcelin Berthelot\, Paris\, 75231\, France
CATEGORIES:Hosted by RDI Member
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220524T183000
DTEND;TZID=UTC:20220524T203000
DTSTAMP:20260507T101221
CREATED:20220428T105319Z
LAST-MODIFIED:20220428T110013Z
UID:10000197-1653417000-1653424200@www.rarediseasesinternational.org
SUMMARY:RDI Informal Side-Event  75th World Health Assembly
DESCRIPTION:Networking experts\, centers of expertise and patient organizations to Strengthen Health Systems for Rare Diseases
URL:https://www.rarediseasesinternational.org/event/informal-side-event/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image.jpg
END:VEVENT
END:VCALENDAR