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X-WR-CALNAME:Rare Diseases International
X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20250101T000000
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DTSTART;TZID=UTC:20250212T090000
DTEND;TZID=UTC:20250212T170000
DTSTAMP:20260508T062124
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LAST-MODIFIED:20250131T061408Z
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SUMMARY:3rd Brazilian Health Technology Assessment (HTA) Forum for Rare Diseases
DESCRIPTION:Instituto Unidos Pela Vida will host the 3rd Brazilian Health Technology Assessment (HTA) Forum for Rare Diseases on February 12\, from 9:00 AM to 5:00 PM\, BRT. The event will take place at Blue Tree Premium Morumbi in São Paulo\, Brazil\, and will also be available online via the Congresse.me platform. \nThe forum aims to provide a platform for discussing Health Technology Assessment (HTA) processes\, with a special focus on rare diseases. It will explore the importance of monitoring\, the challenges involved\, and ways to empower the rare disease community to actively participate in social engagement opportunities.The event will be hosted and moderated by Verônica Stasiak Bednarczuk\, founder and executive director of Unidos pela Vida\, alongside organization directors Marise Basso Amaral and Cristiano Silveira. The Forum will feature simultenous translation into Brazilian sign language\, English\, and Spanish. Register here.
URL:https://www.rarediseasesinternational.org/event/3rd-brazilian-health-technology-assessment-hta-forum-for-rare-diseases/
CATEGORIES:Hosted by RDI Member
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250212T140000
DTEND;TZID=UTC:20250212T150000
DTSTAMP:20260508T062124
CREATED:20250109T104206Z
LAST-MODIFIED:20250109T104250Z
UID:10000366-1739368800-1739372400@www.rarediseasesinternational.org
SUMMARY:RDI PUBLIC WEBINAR: Rare Disease Expertise \, Centers and Networks: Results of the Survey
DESCRIPTION:Join us to for a public webinar presenting the results of the RDI’s recent survey on rare diseases expertise. \nWe will share key findings from the survey on rare disease expertise around the globe\, including insights into care-providing centers\, networks\, and collaborations. \nIf you would like to attend and haven’t register yet\, register here.
URL:https://www.rarediseasesinternational.org/event/rdi-public-webinar-rare-disease-expertise-center-and-networks-results-of-the-survey/
CATEGORIES:Hosted by RDI
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250227T143000
DTEND;TZID=UTC:20250227T160000
DTSTAMP:20260508T062124
CREATED:20250122T115845Z
LAST-MODIFIED:20250213T085252Z
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SUMMARY:Rare Disease Day Webinar-From Grassroots to Global: Growing Momentum towards the WHA Resolution on Rare Diseases
DESCRIPTION:This year’s Rare Disease Day theme “More than You Can Imagine” reminds us of the milestones we have achieved by working together as a global community — most recently\, in our collective efforts to advocate for a World Health Assembly Resolution on Rare Diseases. \nThere is more power\, dedication and commitment in our community than we ever imagined\, and we are proud to bring our members\, partners and friends together to reflect on our progress — how far we have come\, and how far we can go. \nJoin us for a public webinar on Thursday\, 27 February 2025 at 14:30 CET and find out how we can imagine a better future for Persons Living with a Rare Disease — together! \nRegister now.
URL:https://www.rarediseasesinternational.org/event/rare-disease-day-webinar-from-grassroots-to-global-growing-momentum-towards-the-wha-resolution-on-rare-diseases/
CATEGORIES:Hosted by RDI
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