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X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20240101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240205T160000
DTEND;TZID=UTC:20240205T170000
DTSTAMP:20260507T153539
CREATED:20240126T131322Z
LAST-MODIFIED:20240126T131322Z
UID:10000347-1707148800-1707152400@www.rarediseasesinternational.org
SUMMARY:Members Regional Webinar: Americas
DESCRIPTION:The purpose of this webinar is to introduce you to the new RDI team\, present our latest action plan\, and seek your valuable feedback. \nAgenda: \n\nIntroduction of the RDI Team: Get to know the individuals behind RDI\nPresentation of the RDI Action Plan: We will share our strategic action plan outlining our goals\, objectives\, and the roadmap for the coming months\nConsultation by Region: Your input matters. We will open the floor for discussion\, questions and feedback
URL:https://www.rarediseasesinternational.org/event/members-regional-webinar-americas/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2024/01/Americas-Regional-Webinar.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240206T140000
DTEND;TZID=UTC:20240206T170000
DTSTAMP:20260507T153539
CREATED:20240126T131805Z
LAST-MODIFIED:20240126T133136Z
UID:10000348-1707228000-1707238800@www.rarediseasesinternational.org
SUMMARY:Members Regional Webinar: Africa
DESCRIPTION:The purpose of this webinar is to introduce you to the new RDI team\, present our latest action plan\, and seek your valuable feedback. \nAgenda: \n\nIntroduction of the RDI Team: Get to know the individuals behind RDI\nPresentation of the RDI Action Plan: We will share our strategic action plan outlining our goals\, objectives\, and the roadmap for the coming months\nConsultation by Region: Your input matters. We will open the floor for discussion\, questions and feedback
URL:https://www.rarediseasesinternational.org/event/regional-members-webinar-africa/
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2024/01/Regional-Webinars-Africa.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240206T150000
DTEND;TZID=UTC:20240206T160000
DTSTAMP:20260507T153539
CREATED:20240126T133253Z
LAST-MODIFIED:20240126T133253Z
UID:10000349-1707231600-1707235200@www.rarediseasesinternational.org
SUMMARY:Members Regional Webinar: Europe
DESCRIPTION:The purpose of this webinar is to introduce you to the new RDI team\, present our latest action plan\, and seek your valuable feedback.Agenda: \n\nIntroduction of the RDI Team: Get to know the individuals behind RDI\nPresentation of the RDI Action Plan: We will share our strategic action plan outlining our goals\, objectives\, and the roadmap for the coming months\nConsultation by Region: Your input matters. We will open the floor for discussion\, questions and feedback
URL:https://www.rarediseasesinternational.org/event/members-regional-webinar-europe/
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2024/01/Europe-Regional-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240206T150000
DTEND;TZID=UTC:20240206T160000
DTSTAMP:20260507T153539
CREATED:20240126T133414Z
LAST-MODIFIED:20240202T184708Z
UID:10000350-1707231600-1707235200@www.rarediseasesinternational.org
SUMMARY:Members Regional Webinar: Asia Pacific
DESCRIPTION:The purpose of this webinar is to introduce you to the new RDI team\, present our latest action plan\, and seek your valuable feedback. \nAgenda: \n\nIntroduction of the RDI Team: Get to know the individuals behind RDI\nPresentation of the RDI Action Plan: We will share our strategic action plan outlining our goals\, objectives\, and the roadmap for the coming months\nConsultation by Region: Your input matters. We will open the floor for discussion\, questions and feedback
URL:https://www.rarediseasesinternational.org/event/members-regional-webinar-asia-pacific/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2024/01/Asia-Regional-Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240214
DTEND;VALUE=DATE:20240218
DTSTAMP:20260507T153539
CREATED:20231122T094213Z
LAST-MODIFIED:20231122T094213Z
UID:10000343-1707868800-1708214399@www.rarediseasesinternational.org
SUMMARY:RareX 2024
DESCRIPTION:The Third Biennial Rare Diseases Conference\, Rare 2024\, takes place in Johannesburg from February 14 to 17\, 2024. This conference serves a vital purpose — to unite rare disease patients\, dedicated healthcare professionals\, and invested stakeholders in a collaborative environment. It’s a place where dialogues about rare diseases and their treatments find expression. \nRare 2024 is more than a conference; it’s a convergence of South African\, African and International rare diseases communities. It’s a coming together of innovators\, policymakers\, and those entrusted with healthcare and reimbursement matters. It’s where the creators of life-changing drugs and health-related essentials gather to forge a way forward to ensure access and equity for those with rare diseases. Amongst the academic and scientific aspects of this conference\, patients\, caregivers and  support groups bring real inspiration\, learnings from one another\, educating on their missions\, and discovering new ways to serve their communities. \nThrough panel discussions\, presentations\, and networking\, Rare 2024 allows the meeting of minds in the rare diseases community. At the heart of Rare 2024\, you’ll find an environment that is not only professional and productive but also deeply caring and inclusive. It’s an opportunity for patients\, families\, healthcare workers\, and stakeholders to come together to learn\, grow\, and connect. \n 
URL:https://www.rarediseasesinternational.org/event/rarex-2024/
LOCATION:Indaba Hotel\, Johannesburg\, South Africa\, William Nicol Drive\, Pieter Wenning Road\, Johannesburg\, Fourways\, Sandton\, 2191\, South Africa
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2023/11/RareX2024.png
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