BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Rare Diseases International - ECPv6.2.7//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://www.rarediseasesinternational.org X-WR-CALDESC:Events for Rare Diseases International REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:UTC BEGIN:STANDARD TZOFFSETFROM:+0000 TZOFFSETTO:+0000 TZNAME:UTC DTSTART:20220101T000000 END:STANDARD TZID:Europe/Paris BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20220327T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20221030T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20221101 DTEND;VALUE=DATE:20221102 DTSTAMP:20260508T153759 CREATED:20220923T095305Z LAST-MODIFIED:20220923T095305Z UID:10000295-1667260800-1667347199@www.rarediseasesinternational.org SUMMARY:World Acromegaly Awareness Day 2022 DESCRIPTION:Annual Awareness Day on November 1st\, to raise awareness for patients diagnosed with Acromegaly. \nThe goal is to help people with this rare endocrine disease get the timely diagnosis and effective treatment they need and deserve. URL:https://www.rarediseasesinternational.org/event/world-acromegaly-day-2022611-1/ CATEGORIES:Hosted by RDI Member ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-18.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20221114 DTEND;VALUE=DATE:20221118 DTSTAMP:20260508T153759 CREATED:20220919T162247Z LAST-MODIFIED:20220919T163928Z UID:10000291-1668384000-1668729599@www.rarediseasesinternational.org SUMMARY:World Orphan Drug Congress Europe 2022 (WODC) DESCRIPTION: URL:https://www.rarediseasesinternational.org/event/wodc-europe-2022/ LOCATION:MELIA SITGES HOTEL\, SITGES\, Barcelona\, Spain CATEGORIES:Global Event ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-14.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20221116T000000 DTEND;TZID=UTC:20221119T000000 DTSTAMP:20260508T153759 CREATED:20220914T113455Z LAST-MODIFIED:20220914T113455Z UID:10000286-1668556800-1668816000@www.rarediseasesinternational.org SUMMARY:International Scientific Conference on Albinism (ISCA) DESCRIPTION:ISCA is a unique scientific conference organized by the Global Albinism Alliance and shaped to be a global forum to improve the health of those with albinism. \n(Online Conference) URL:https://www.rarediseasesinternational.org/event/isca-2022/ CATEGORIES:Global Event ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-4.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Paris:20221117T000000 DTEND;TZID=Europe/Paris:20221117T000000 DTSTAMP:20260508T153759 CREATED:20221116T101610Z LAST-MODIFIED:20221116T101610Z UID:10000303-1668643200-1668643200@www.rarediseasesinternational.org SUMMARY:Cobertura Universal de Salud para las enfermedades raras: Preguntas clave DESCRIPTION:Taller previo a la conferencia\n17 de noviembre de 2022\n11:00-12:15 GMT-3 / 15:00-16:15 CET\nVirtual event → Haga clic aquí para participar : bit.ly/3O8nnVP (no es necesario registrarse antes) \n¡Complete la encuesta antes del taller! → https://forms.gle/z9RL5vSeUftpdeAL7 URL:https://www.rarediseasesinternational.org/event/cus-enfermedades-raras-2022-11-17/ CATEGORIES:Hosted by RDI,Hosted by RDI Member ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20221122T140000 DTEND;TZID=UTC:20221122T220000 DTSTAMP:20260508T153759 CREATED:20220721T120524Z LAST-MODIFIED:20220721T120524Z UID:10000268-1669125600-1669154400@www.rarediseasesinternational.org SUMMARY:3rd International FAIR data ‘visiting’ for Duchenne & Other Rare Diseases DESCRIPTION:For the first time\, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimizing the use of patients’ data. URL:https://www.rarediseasesinternational.org/event/international-fair-data-2022/ CATEGORIES:Hosted by RDI Member ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-5.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20221125 DTEND;VALUE=DATE:20221127 DTSTAMP:20260508T153759 CREATED:20220721T124846Z LAST-MODIFIED:20220721T124846Z UID:10000276-1669334400-1669507199@www.rarediseasesinternational.org SUMMARY:RAREFEST22 DESCRIPTION:FREE to attend\, RAREfest22 is a public-facing\, 2-day rare disease inspired festival featuring interactive talks\, demos and exhibits\, film and art showcasing ground-breaking science\, visionary technology and pioneering organisations\, improving lives and bringing hope to those affected by rare conditions. \nFOR THE EXPERTS. FOR THE CURIOUS. FOR ALL AGES. FOR EVERYONE. FOR FREE! URL:https://www.rarediseasesinternational.org/event/rarefest-22-2022-11/ LOCATION:The Guildhall Market Square\, The Guildhall Market Square Cambridge\, Cambridge\, CB2 3QB\, United Kingdom CATEGORIES:Global Event,Hosted by RDI,Hosted by RDI Member ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-7.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20221125T000000 DTEND;TZID=UTC:20221127T000000 DTSTAMP:20260508T153759 CREATED:20220831T080616Z LAST-MODIFIED:20220831T080616Z UID:10000282-1669334400-1669507200@www.rarediseasesinternational.org SUMMARY:Asia Pacific Alliance of Rare Disease Organisations (APARDO)\, Annual Conference DESCRIPTION:The Asia Pacific Alliance of Rare Disease Organizations (APARDO) brings together patient advocate leaders from across the Asia Pacific region representing rare diseases and rare cancers\, with the goals of sharing experiences and learning\, increasing the patient voice\, and working  together on common goals\, facilitating research\, sharing resources and best practices\, and collaborating on joint initiatives. \nSince 2021\, countries across the Asia Pacific (APAC) region were slowly returning to “normal” with events becoming “in-person” once again. \nThis year\, we are happy to announce seven planned sessions\, collaboration roundtables and networking opportunities over the course of two and a half days. \nLocation: In-Person Thailand URL:https://www.rarediseasesinternational.org/event/apardo-annual-conference/ CATEGORIES:Hosted by RDI Member ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/APARDO-Events.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20221128T000000 DTEND;TZID=UTC:20221128T000000 DTSTAMP:20260508T153759 CREATED:20221122T151913Z LAST-MODIFIED:20221122T151913Z UID:10000304-1669593600-1669593600@www.rarediseasesinternational.org SUMMARY:UNESCO-IBE\, Agrenska\, RDI\, - Improving inclusion of children living with a rare disease through curriculum transformation DESCRIPTION:UNESCO-IBE is inviting you to join the webinar on “Improving inclusion of children living with a rare disease through curriculum transformation”\, co-organised with the Agrenska Foundation and Rare Diseases International and taking place on 28 November 2022 2:00-4:00 PM – Geneva time – (UTC+1). \nRegister here : https://unesco-org.zoom.us/webinar/register/WN_fLY9Q7WITmGJnL_F9OT09A \nMore info here : http://www.ibe.unesco.org/en/event/webinar-improving-inclusion-children-living-rare-disease-through-curriculum-transformation URL:https://www.rarediseasesinternational.org/event/webnar-inclusion-children-rare-diseases-unesco-2022-11-28/ CATEGORIES:Hosted by RDI,Hosted by RDI Member ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-2.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20221129 DTEND;VALUE=DATE:20221201 DTSTAMP:20260508T153759 CREATED:20221125T172113Z LAST-MODIFIED:20221125T172113Z UID:10000307-1669680000-1669852799@www.rarediseasesinternational.org SUMMARY:Unite Annual Summit 2022 DESCRIPTION:On November 29 and 30\, the Global Heart Hub is bringing together patient representatives from all over the world for the second Unite Annual Summit. (Free Virtual Event) \nRegister : https://globalhearthub.org/unite-annual-summit/ URL:https://www.rarediseasesinternational.org/event/unite-annual-summit-2022-11-30/ CATEGORIES:Global Event ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-7.png END:VEVENT END:VCALENDAR