World Health Assembly Side Event, Geneva

Restaurant Vieux Bois 12, avenue de la Paix, Geneva, Switzerland

A side event to be held alongside the World Health Assembly in Geneva. The event will be followed by a cocktail reception.

NORD Living Rare, Living Stronger Patient and Family Forum

The 2024 NORD® Living Rare, Living Stronger® Patient and Family Forum will be held in Los Angeles, CA at the Hilton Universal City on June 8. After six years, we are excited to bring this program to the west coast! This event will bring together the incredible rare disease community for a day filled with […]

World Congress for Rare Skin Disorders

Maison Internationale, Cité Internationale de l'Université de Paris 17 Boulevard Jourdan, Paris, France

The objectives of the congress are: To share knowledge on diagnosis (including pathophysiology and disease classification) and management of rare and complex skin disorders (skin cancers and aggressive tumors, autoimmune bullous diseases, complex vascular malformations and tumors, auto-inflammatory and autoimmune cutaneous disorders, toxiderma, ectodermal dysplasia and incontinentia pigmenti, DNA Repair Disorders & photosensitivity, monogenic fibrosing […]