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X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20220101T000000
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DTSTART:20220327T010000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20221122T140000
DTEND;TZID=UTC:20221122T220000
DTSTAMP:20260522T013133
CREATED:20220721T120524Z
LAST-MODIFIED:20220721T120524Z
UID:10000268-1669125600-1669154400@www.rarediseasesinternational.org
SUMMARY:3rd International FAIR data ‘visiting’ for Duchenne & Other Rare Diseases
DESCRIPTION:For the first time\, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimizing the use of patients’ data.
URL:https://www.rarediseasesinternational.org/event/international-fair-data-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20221117T000000
DTEND;TZID=Europe/Paris:20221117T000000
DTSTAMP:20260522T013133
CREATED:20221116T101610Z
LAST-MODIFIED:20221116T101610Z
UID:10000303-1668643200-1668643200@www.rarediseasesinternational.org
SUMMARY:Cobertura Universal de Salud para las enfermedades raras: Preguntas clave
DESCRIPTION:Taller previo a la conferencia\n17 de noviembre de 2022\n11:00-12:15 GMT-3 / 15:00-16:15 CET\nVirtual event → Haga clic aquí para participar : bit.ly/3O8nnVP (no es necesario registrarse antes) \n¡Complete la encuesta antes del taller! → https://forms.gle/z9RL5vSeUftpdeAL7
URL:https://www.rarediseasesinternational.org/event/cus-enfermedades-raras-2022-11-17/
CATEGORIES:Hosted by RDI,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221101
DTEND;VALUE=DATE:20221102
DTSTAMP:20260522T013133
CREATED:20220923T095305Z
LAST-MODIFIED:20220923T095305Z
UID:10000295-1667260800-1667347199@www.rarediseasesinternational.org
SUMMARY:World Acromegaly Awareness Day 2022
DESCRIPTION:Annual Awareness Day on November 1st\, to raise awareness for patients diagnosed with Acromegaly. \nThe goal is to help people with this rare endocrine disease get the timely diagnosis and effective treatment they need and deserve.
URL:https://www.rarediseasesinternational.org/event/world-acromegaly-day-2022611-1/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-18.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221025
DTEND;VALUE=DATE:20221026
DTSTAMP:20260522T013133
CREATED:20220928T142118Z
LAST-MODIFIED:20220928T142118Z
UID:10000301-1666656000-1666742399@www.rarediseasesinternational.org
SUMMARY:World Spina Bifida and Hydrocephalus Day 2022
DESCRIPTION:The International Federation for Spina Bifida and Hydrocephalus warmly INVITES persons with Spina Bifida and Hydrocephalus from all over the world as well as all interested parties to celebrate the 10th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) on the topic of “Elevate Your Voice” on October 25 2022. Various activities will take place around the WSBHD22 throughout the month of October. All events\, materials\, information and latest updates are available on www.worldspinabifidahydrocephalusday.com
URL:https://www.rarediseasesinternational.org/event/world-spina-bifida-and-hydrocephalus-day-2022-10-25/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-28.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221015
DTEND;VALUE=DATE:20221017
DTSTAMP:20260522T013133
CREATED:20220919T150550Z
LAST-MODIFIED:20220919T150550Z
UID:10000290-1665792000-1665964799@www.rarediseasesinternational.org
SUMMARY:The 1st World Patients Conference in Rome (Italy)
DESCRIPTION:WPA’s 1st World Patients Conference will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-rome-2022-10/
LOCATION:Crowne Plaza Rome – St. Peter’s\, Italy
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-13.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221012
DTEND;VALUE=DATE:20221016
DTSTAMP:20260522T013133
CREATED:20220721T094439Z
LAST-MODIFIED:20220721T113906Z
UID:10000264-1665532800-1665878399@www.rarediseasesinternational.org
SUMMARY:IPOPI’s XVII Global Patients’ Meeting 2022 (In-Person)
DESCRIPTION:IPOPI‘s National Member Organisations are all invited to the XVII Global Patients’ Meeting in Gothenburg\, Sweden\, 12-15 October 2022! Join us for an opportunity to finally meet up with the global PID community in person\, and enjoy three days of educational sessions presenting the latest medical advances on primary immunodeficiencies\, as well as fruitful discussions and skills-building opportunities.
URL:https://www.rarediseasesinternational.org/event/ipopi-global-patients-meeting-2022-10-12/
LOCATION:Gothenburg\, Sweden
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260522T013133
CREATED:20220228T124144Z
LAST-MODIFIED:20220721T130025Z
UID:10000170-1665360000-1665446399@www.rarediseasesinternational.org
SUMMARY:Drug Repurposing for Rare Diseases 2022
DESCRIPTION:Drug Repurposing for Rare Diseases highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. \nAn event unique in its collaborative and multi-stakeholder focus\, we bring patient groups\, researchers and industry professionals together to showcase excellent examples of rare repurposing.
URL:https://www.rarediseasesinternational.org/event/drug-repurposing-for-rare-diseases-2022/
LOCATION:America Square Conference Centre\, London\, 17\, One Crosswall\, America Square\,\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/02/Website-Event-Image-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221010
DTSTAMP:20260522T013133
CREATED:20220923T153052Z
LAST-MODIFIED:20220923T153611Z
UID:10000297-1665100800-1665359999@www.rarediseasesinternational.org
SUMMARY:2022 Rare Neuroimmune Disorders Symposium
DESCRIPTION:The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. On October 7 – 9\, 2022\, the RNDS will host a hybrid event—participants can choose to attend either in-person\, virtually via online streaming\, or partly in-person and partly online. An online pre-RNDS will be hosted on September 9\, 2022\, to dive deeper into topics related to your rare neuroimmune disorder and start meeting others that will attend the RNDS in October. We remain committed to hosting a conference that empowers our rare disease community to become better advocates for themselves and provides valuable resources to keep learning about these rare conditions. For the online-only registration: https://hopin.com/events/2022-rnds. \n  \nOnline and In person
URL:https://www.rarediseasesinternational.org/event/rare-neuroimmune-disorders-symposium-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-21.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220929T090000
DTEND;TZID=UTC:20220929T100000
DTSTAMP:20260522T013133
CREATED:20220927T214018Z
LAST-MODIFIED:20220927T214018Z
UID:10000300-1664442000-1664445600@www.rarediseasesinternational.org
SUMMARY:UHC Day campaign kick-off call
DESCRIPTION:Join us for a UHC Day campaign kick-off call on 29 September at 9 a.m. ET\, where we will reveal this year’s UHC Day theme\, share opportunities to engage with this year’s campaign\, and discuss exciting new #HealthForAll partnerships.
URL:https://www.rarediseasesinternational.org/event/uhc-day-campaign-kick-off-call-2022-09-29/
CATEGORIES:Global Event,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-27.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220915
DTEND;VALUE=DATE:20220917
DTSTAMP:20260522T013133
CREATED:20220907T125708Z
LAST-MODIFIED:20220907T125708Z
UID:10000283-1663200000-1663372799@www.rarediseasesinternational.org
SUMMARY:1st WORLD PATIENTS CONFERENCE
DESCRIPTION:The 1st WORLD PATIENTS CONFERENCE\, organised by The World Patients Alliance\,  will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-2022-10-15/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220914T000000
DTEND;TZID=UTC:20220917T000000
DTSTAMP:20260522T013133
CREATED:20220831T075024Z
LAST-MODIFIED:20220831T075338Z
UID:10000281-1663113600-1663372800@www.rarediseasesinternational.org
SUMMARY:2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder
DESCRIPTION:Taking place in Rome\, Italy\, and with a virtual attendance option for those around the world\, The International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) is a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed.
URL:https://www.rarediseasesinternational.org/event/2022-symposium-on-the-ehlers-danlos-syndromes/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220907T120000
DTEND;TZID=Europe/Paris:20220907T130000
DTSTAMP:20260522T013133
CREATED:20220824T113029Z
LAST-MODIFIED:20220824T113029Z
UID:10000280-1662552000-1662555600@www.rarediseasesinternational.org
SUMMARY:Small Group Discussion - Advocating for a National Plan
DESCRIPTION:Rare Voices Australia (RVA) will host a small group discussion on lessons learned and successes on the road to advocating for Australia’s national plan. \nThe meeting is particularly designed for patient advocates. Please be ready to ask questions and be part of a conversation on this important topic.\n\nONLINE
URL:https://www.rarediseasesinternational.org/event/rva-small-group-discussion/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220706T183000
DTEND;TZID=Europe/Paris:20220706T210000
DTSTAMP:20260522T013133
CREATED:20220505T160820Z
LAST-MODIFIED:20220506T091917Z
UID:10000205-1657132200-1657141200@www.rarediseasesinternational.org
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:The Cambridge Rare Disease Showcase\, a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs\, is back for the first time in two years!
URL:https://www.rarediseasesinternational.org/event/cambridge-rd-showcase-care-2022-7/
LOCATION:Clayton Hotel\, Cambridge\, 27-29 Station Rd\, Cambridge\, CB1 2FB\, United Kingdom
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220627
DTEND;VALUE=DATE:20220702
DTSTAMP:20260522T013133
CREATED:20220107T154403Z
LAST-MODIFIED:20220121T124902Z
UID:10000088-1656288000-1656719999@www.rarediseasesinternational.org
SUMMARY:European Conferences on Rare Diseases and Orphan Drugs (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/ecrd-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/01/Website-Event-Image-13.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220616T140000
DTEND;TZID=UTC:20220616T170000
DTSTAMP:20260522T013133
CREATED:20220425T155554Z
LAST-MODIFIED:20220426T094211Z
UID:10000111-1655388000-1655398800@www.rarediseasesinternational.org
SUMMARY:RDI Membership Meeting (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-membership-meeting-2022-6/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220608
DTEND;VALUE=DATE:20220610
DTSTAMP:20260522T013133
CREATED:20220506T094628Z
LAST-MODIFIED:20220506T094914Z
UID:10000213-1654646400-1654819199@www.rarediseasesinternational.org
SUMMARY:Rare Drug Strategy Conference
DESCRIPTION:This two-day conference brings together the stakeholders and the learnings from all CORD and others’ consultations.
URL:https://www.rarediseasesinternational.org/event/rare-drug-strategy-2022-6/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220531T090000
DTEND;TZID=Europe/Paris:20220531T180000
DTSTAMP:20260522T013134
CREATED:20220512T165800Z
LAST-MODIFIED:20220512T170141Z
UID:10000237-1653987600-1654020000@www.rarediseasesinternational.org
SUMMARY:Colloque Scientifique Annuel 2022\, Fondation Maladies Rares
DESCRIPTION:Each year\, Plateforme Maladies Rares are organising a conference bringing together the major players in rare disease research.
URL:https://www.rarediseasesinternational.org/event/colloque-scientifiques-foundation-maladies-rares-2022-5/
LOCATION:College de France\, 11 Place Marcelin Berthelot\, Paris\, 75231\, France
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-10.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220522
DTEND;VALUE=DATE:20220523
DTSTAMP:20260522T013134
CREATED:20220512T170839Z
LAST-MODIFIED:20220512T170839Z
UID:10000241-1653177600-1653263999@www.rarediseasesinternational.org
SUMMARY:Walk the Talk: Health For All Challenge\, WHO
DESCRIPTION:The World Health Organization will organize the 3rd edition in Geneva of the “Walk the Talk: Health For All Challenge” on Sunday 22 May\, on the morning of the World Health Assembly. \nThis in-person event will invite participants to run or walk over two routes: 3 km and 4.2 km. People of all ages and abilities will start at Place des Nations from 8.30am. \nPeople around the world are invited to take part in the event by tracking their performances through a dedicated app. By registering\, participants will receive a login to take part-in anywhere in the world. More information is coming soon.
URL:https://www.rarediseasesinternational.org/event/walk-the-talk-who-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-11.png
ORGANIZER;CN="The World Health Organization":MAILTO:https://www.who.int/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220520
DTSTAMP:20260522T013134
CREATED:20220506T100033Z
LAST-MODIFIED:20220506T100238Z
UID:10000217-1652745600-1653004799@www.rarediseasesinternational.org
SUMMARY:Online workshop: Understanding access and reimbursement
DESCRIPTION:This workshop will outline the basics of access and reimbursement: what it means\, when it happens\, and who is involved. It will also explore the key ways in which patient groups can contribute to the process and what should they be prepared for.
URL:https://www.rarediseasesinternational.org/event/woekshop-access-reimbursement-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220518
DTSTAMP:20260522T013134
CREATED:20220516T084441Z
LAST-MODIFIED:20220516T084814Z
UID:10000244-1652745600-1652831999@www.rarediseasesinternational.org
SUMMARY:Stakeholders Workshop : A call for action on Rare Diseases (closed meeting)
DESCRIPTION:Rare Disorders Kenya\, together with Kenya Medical Research Institute (KEMRI)-CPHR and Cambridge Africa are holding a stakeholders workshop on rare diseases in Kenya. \nTheme: A call for action on Rare Diseases
URL:https://www.rarediseasesinternational.org/event/workshop-call-for-action-kenya-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-12.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220513
DTEND;VALUE=DATE:20220516
DTSTAMP:20260522T013134
CREATED:20220506T101026Z
LAST-MODIFIED:20220506T101228Z
UID:10000221-1652400000-1652659199@www.rarediseasesinternational.org
SUMMARY:Congreso Internacional Duchenne Parent Project España
DESCRIPTION:International congress to facilitate families and those affected to provide information and share experiences to promote support and learn about the different aspects of Duchenne and Becker Muscular Dystrophy.
URL:https://www.rarediseasesinternational.org/event/congreso-internatcional-duchenne-2022-5/
LOCATION:Novotel Madrid Center\, Madrid\, Spain
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220508
DTEND;VALUE=DATE:20220512
DTSTAMP:20260522T013134
CREATED:20220506T102318Z
LAST-MODIFIED:20220506T102454Z
UID:10000225-1651968000-1652313599@www.rarediseasesinternational.org
SUMMARY:WFH 2022 WORLD CONGRESS
DESCRIPTION:The World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) will welcome the global bleeding disorders community to the WFH 2022 World Congress—a major hybrid event of the international bleeding disorders community. The in-person component of the hybrid Congress will take place in Montreal\, Canada\, with select sessions being broadcast through our virtual platform.
URL:https://www.rarediseasesinternational.org/event/wfh-world-congress-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20220507T090000
DTEND;TZID=Europe/Helsinki:20220507T180000
DTSTAMP:20260522T013134
CREATED:20220426T104133Z
LAST-MODIFIED:20220426T104649Z
UID:10000193-1651914000-1651946400@www.rarediseasesinternational.org
SUMMARY:Fabry Expert Meeting 2022 (Online)
DESCRIPTION:Every year\, Fabry International Network brings patients together where they will receive valuable\, up-to-date information about Fabry disease as well as on-going clinical trial updates and new trial opportunities.
URL:https://www.rarediseasesinternational.org/event/fabry-expert-meeting-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20220506T120000
DTEND;TZID=Europe/Helsinki:20220506T130000
DTSTAMP:20260522T013134
CREATED:20220503T095521Z
LAST-MODIFIED:20220504T091057Z
UID:10000201-1651838400-1651842000@www.rarediseasesinternational.org
SUMMARY:IFSBH MEMBERS TRAINING : From local to global – How to influence international actions through national advocacy (Online)
DESCRIPTION:The next IF members training on policy and advocacy will take place on May 6 2022 at 12 PM Brussels time. \nA session to discuss the role of civil society in shaping the activities of international organisations and how campaigns for actions are designed and implemented. \nDolores Cvitičanin – Public Affairs Manager at RDI – will speak further on how to use a UN Resolution on a National Advocacy level.\n\nParticipation is limited to two participants from each IF member association\n 
URL:https://www.rarediseasesinternational.org/event/ifsbh-membership-training-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220506T090000
DTEND;TZID=UTC:20220506T160000
DTSTAMP:20260522T013134
CREATED:20220426T102945Z
LAST-MODIFIED:20220503T073323Z
UID:10000189-1651827600-1651852800@www.rarediseasesinternational.org
SUMMARY:4th Symposium on Birth Defects and Rare Diseases (Hybrid)
DESCRIPTION:Theme: “Patient Centricity: Key to Achieving Universal Health and Inclusion” \nMary Wang (Science Policy Manager\, Rare Diseases International) and Matt Bolz-Johson (Programme Director – Collaborative Global Network for Rare Diseases\, Rare Diseases International) will speak about regional and global collaborative initiatives. 
URL:https://www.rarediseasesinternational.org/event/birth-defects-symposium-2022-5/
LOCATION:Kumasi\, Ghana
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220427
DTEND;VALUE=DATE:20220430
DTSTAMP:20260522T013134
CREATED:20220405T121238Z
LAST-MODIFIED:20220425T162748Z
UID:10000102-1651017600-1651276799@www.rarediseasesinternational.org
SUMMARY:Diaphragmatic Congenital Hernia International Symposium 2022 (Hybrid)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/cdh2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Diaphragmatic-Congenital-Hernia-International-Symposium-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220317T150000
DTEND;TZID=Europe/Paris:20220317T160000
DTSTAMP:20260522T013134
CREATED:20220317T080455Z
LAST-MODIFIED:20220317T080539Z
UID:10000174-1647529200-1647532800@www.rarediseasesinternational.org
SUMMARY:Webinar - Plain Language Summaries
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/ecrd-2022-2/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/03/Website-Event-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260522T013134
CREATED:20220121T125602Z
LAST-MODIFIED:20220211T110402Z
UID:10000162-1646006400-1646092799@www.rarediseasesinternational.org
SUMMARY:Global Rare Disease Day Event - World Expo Dubai/ONLINE
DESCRIPTION:Register
URL:https://www.rarediseasesinternational.org/event/global-rare-disease-day/
CATEGORIES:Global Event,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/01/Website-Event-Image-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260522T013134
CREATED:20211216T094258Z
LAST-MODIFIED:20211216T094431Z
UID:10000142-1646006400-1646092799@www.rarediseasesinternational.org
SUMMARY:Rare Disease Day
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rare-disease-day/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2021/12/Rare-Disease-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220227
DTEND;VALUE=DATE:20220228
DTSTAMP:20260522T013134
CREATED:20220107T155802Z
LAST-MODIFIED:20220107T155945Z
UID:10000158-1645920000-1646006399@www.rarediseasesinternational.org
SUMMARY:RaceFor7
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/racefor7/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/01/Rarefor7-logo.jpg
END:VEVENT
END:VCALENDAR