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X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20220101T000000
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DTSTART:20220327T010000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250305
DTEND;VALUE=DATE:20250308
DTSTAMP:20260521T223904
CREATED:20250128T104346Z
LAST-MODIFIED:20250128T104728Z
UID:10000369-1741132800-1741391999@www.rarediseasesinternational.org
SUMMARY:RE(ACT) Congress and IRDiRC Conference
DESCRIPTION:Continuing the legacy of the esteemed IRDiRC Conference series (now in its 6th edition) and the RE(ACT) Congress series (celebrating its 8th edition)\, this conference brings together visionary leaders\, distinguished experts\, and emerging talents from diverse scientific domains\, converging to unveil groundbreaking research\, foster dialogue\, and shape policies crucial to rare disease research. \nSince its inception in 2012\, the RE(ACT) Congress\, pioneered by the BLACKSWAN Foundation\, has catalyzed scientific collaboration and advancement in rare and orphan diseases. Meanwhile\, IRDiRC\, established in April 2011 under the auspices of the European Commission and the US National Institutes of Health\, has been pivotal in galvanizing global cooperation among researchers\, funders\, and patient advocacy groups within a multinational framework. \nThis joint venture of the 8th RE(ACT) Congress and the 6th IRDiRC Conference\, in partnership with the European Rare Diseases Research Alliance (ERDERA)\, Eurordis (the European Alliance of Patient Organizations)\, symbolizes a unified commitment to surmounting rare disease challenges through collective action and shared knowledge.
URL:https://www.rarediseasesinternational.org/event/react-congress-and-irdirc-conference/
LOCATION:Brussels Pullman Centre Midi
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2025/01/REACT-Conf-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250212T090000
DTEND;TZID=UTC:20250212T170000
DTSTAMP:20260521T223904
CREATED:20250131T061408Z
LAST-MODIFIED:20250131T061408Z
UID:10000370-1739350800-1739379600@www.rarediseasesinternational.org
SUMMARY:3rd Brazilian Health Technology Assessment (HTA) Forum for Rare Diseases
DESCRIPTION:Instituto Unidos Pela Vida will host the 3rd Brazilian Health Technology Assessment (HTA) Forum for Rare Diseases on February 12\, from 9:00 AM to 5:00 PM\, BRT. The event will take place at Blue Tree Premium Morumbi in São Paulo\, Brazil\, and will also be available online via the Congresse.me platform. \nThe forum aims to provide a platform for discussing Health Technology Assessment (HTA) processes\, with a special focus on rare diseases. It will explore the importance of monitoring\, the challenges involved\, and ways to empower the rare disease community to actively participate in social engagement opportunities.The event will be hosted and moderated by Verônica Stasiak Bednarczuk\, founder and executive director of Unidos pela Vida\, alongside organization directors Marise Basso Amaral and Cristiano Silveira. The Forum will feature simultenous translation into Brazilian sign language\, English\, and Spanish. Register here.
URL:https://www.rarediseasesinternational.org/event/3rd-brazilian-health-technology-assessment-hta-forum-for-rare-diseases/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2025/01/English-Feed.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250121T080000
DTEND;TZID=UTC:20250124T170000
DTSTAMP:20260521T223904
CREATED:20250109T105532Z
LAST-MODIFIED:20250109T105532Z
UID:10000367-1737446400-1737738000@www.rarediseasesinternational.org
SUMMARY:Global Albinism Alliance : ISCA 2025
DESCRIPTION:Join the Global Albinism Alliance at the 2025 International Scientific Conference on Albinism. \nThe event  will be held virtually from January 21-25. \nIf you would like to attend and haven’t registered yet\, you can register here. The deadline for registration is on 15 January. \nLearn more about the programme here.
URL:https://www.rarediseasesinternational.org/event/global-albinism-alliance-isca-2025/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2025/01/1734599390733.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240607
DTEND;VALUE=DATE:20240609
DTSTAMP:20260521T223904
CREATED:20231122T095729Z
LAST-MODIFIED:20240429T142527Z
UID:10000345-1717718400-1717891199@www.rarediseasesinternational.org
SUMMARY:NORD Living Rare\, Living Stronger Patient and Family Forum
DESCRIPTION:The 2024 NORD® Living Rare\, Living Stronger® Patient and Family Forum will be held in Los Angeles\, CA at the Hilton Universal City on June 8. After six years\, we are excited to bring this program to the west coast! This event will bring together the incredible rare disease community for a day filled with learning\, networking\, and relationship building. The Living Rare Forum is an opportunity for people living with rare diseases and their families to come together\, often for the first time\, to gain practical knowledge on how to manage their health and live their best rare lives. \nProgram topics often include sessions about how to advocate for yourself in the healthcare system\, how to coordinate your medical care team\, and how get involved in rare disease research and advocacy. This is a program you don’t want to miss!
URL:https://www.rarediseasesinternational.org/event/nord-living-rare-living-stronger-patient-and-family-forum/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/webp:https://www.rarediseasesinternational.org/wp-content/uploads/2023/11/lrls-logo-2024.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240421T080000
DTEND;TZID=UTC:20240424T170000
DTSTAMP:20260521T223904
CREATED:20240402T161429Z
LAST-MODIFIED:20240402T161559Z
UID:10000355-1713686400-1713978000@www.rarediseasesinternational.org
SUMMARY:World Federation of Hemophilia Congress
DESCRIPTION:Get ready to embark on an unparalleled journey into the world of inherited bleeding disorders—which are rare diseases—at the WFH 2024 World Congress. Taking place in Madrid\, Spain from April 21 to 24\, the event is co-hosted by the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo). With over 90 hours of educational content meticulously curated across eight tracks\, this event promises to be the most important meeting in the field this year. From engaging workshops and plenary sessions to informative poster presentations\, attendees will have the opportunity to immerse themselves in the latest advancements\, insights\, and discussions related to inherited bleeding disorders care. \nWith networking events\, language interpretation services\, and celebratory moments as part of the program\, the WFH 2024 World Congress promises an enriching and unforgettable experience for all attendees. Learn more and register here.
URL:https://www.rarediseasesinternational.org/event/world-federation-of-hemophilia-congress/
LOCATION:Madrid\, Spain
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2024/04/eBlast-Header-March-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230225
DTEND;VALUE=DATE:20230227
DTSTAMP:20260521T223904
CREATED:20221125T154627Z
LAST-MODIFIED:20221125T163216Z
UID:10000306-1677283200-1677455999@www.rarediseasesinternational.org
SUMMARY:1st International UAE Rare Disease Society Congress
DESCRIPTION:For the First time\, the 1st International UAE Rare Disease Society Congress aims to gather all the patients’ community who is suffering with rare diseases conditions with the help of our genetic scientists\, clinical geneticists and different subspecialties for rare disease. \nThis one-of-a-kind event will bring together important clinical practitioners\, academics\, and experts to debate community concerns both locally and worldwide. \n  \nIN-PERSON from February 25-26\, 2023. \n  \nRegister here : https://rarediseases.ae/uae-rare-disease-society/
URL:https://www.rarediseasesinternational.org/event/international-uae-rare-disease-society-congress-2023-02/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230209
DTEND;VALUE=DATE:20230210
DTSTAMP:20260521T223904
CREATED:20230206T095321Z
LAST-MODIFIED:20230206T095414Z
UID:10000317-1675900800-1675987199@www.rarediseasesinternational.org
SUMMARY:FORO DE ALTO NIVEL X ENCUENTRO/CONGRESO IBEROAMERICANO DE ENFERMEDADES RARAS\, HUÉRFANAS O POCO FRECUENTES
DESCRIPTION:Ibero-American Rare Diseases Alliance (ALIBER) Annual Conference\, on 9 February 2023 in Costa Rica. See event agenda.
URL:https://www.rarediseasesinternational.org/event/aliber2023/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2023/02/ALIBER-Conference-Image-2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221201T000000
DTEND;TZID=UTC:20221203T000000
DTSTAMP:20260521T223904
CREATED:20220721T090705Z
LAST-MODIFIED:20220721T090705Z
UID:10000256-1669852800-1670025600@www.rarediseasesinternational.org
SUMMARY:Duchenne Patient Academy 2022
DESCRIPTION:Duchenne Patient Academy is a collaboration between the World Duchenne Organization and Duchenne Data Foundation. It aims to inspire and equip patient advocates to become change makers and build a better future for people living with dystrophinopathies. So far\, it has trained over 500 DMD/BMD patient advocates from 52 countries. \nONLINE \nApplications for Duchenne Patient Academy open mid-September.
URL:https://www.rarediseasesinternational.org/event/duchenne-patient-academy-2022-12/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221201
DTEND;VALUE=DATE:20221203
DTSTAMP:20260521T223904
CREATED:20220927T212431Z
LAST-MODIFIED:20220927T212431Z
UID:10000299-1669852800-1670025599@www.rarediseasesinternational.org
SUMMARY:International Conference on Clinical Research Networks for Rare Diseases
DESCRIPTION:The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing a two-day conference on clinical research networks (CRNs) for rare diseases\, which will take place on December 1 and 2. The objective of this conference is to gather experts from different continents to increase mutual knowledge on CRNs structure\, activities and identify pathways to stimulate collaboration and interoperability of these networks.   \nMore information: https://cutt.ly/hVSG5hB
URL:https://www.rarediseasesinternational.org/event/clinical-research-networks-for-rare-diseases-2022-12/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221128T000000
DTEND;TZID=UTC:20221128T000000
DTSTAMP:20260521T223904
CREATED:20221122T151913Z
LAST-MODIFIED:20221122T151913Z
UID:10000304-1669593600-1669593600@www.rarediseasesinternational.org
SUMMARY:UNESCO-IBE\, Agrenska\, RDI\, - Improving inclusion of children living with a rare disease through curriculum transformation
DESCRIPTION:UNESCO-IBE is inviting you to join the webinar on “Improving inclusion of children living with a rare disease through curriculum transformation”\, co-organised with the Agrenska Foundation and Rare Diseases International and taking place on 28 November 2022 2:00-4:00 PM – Geneva time – (UTC+1). \nRegister here : https://unesco-org.zoom.us/webinar/register/WN_fLY9Q7WITmGJnL_F9OT09A \nMore info here : http://www.ibe.unesco.org/en/event/webinar-improving-inclusion-children-living-rare-disease-through-curriculum-transformation
URL:https://www.rarediseasesinternational.org/event/webnar-inclusion-children-rare-diseases-unesco-2022-11-28/
CATEGORIES:Hosted by RDI,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221125T000000
DTEND;TZID=UTC:20221127T000000
DTSTAMP:20260521T223904
CREATED:20220831T080616Z
LAST-MODIFIED:20220831T080616Z
UID:10000282-1669334400-1669507200@www.rarediseasesinternational.org
SUMMARY:Asia Pacific Alliance of Rare Disease Organisations (APARDO)\, Annual Conference
DESCRIPTION:The Asia Pacific Alliance of Rare Disease Organizations (APARDO) brings together patient advocate leaders from across the Asia Pacific region representing rare diseases and rare cancers\, with the goals of sharing experiences and learning\, increasing the patient voice\, and working  together on common goals\, facilitating research\, sharing resources and best practices\, and collaborating on joint initiatives. \nSince 2021\, countries across the Asia Pacific (APAC) region were slowly returning to “normal” with events becoming “in-person” once again. \nThis year\, we are happy to announce seven planned sessions\, collaboration roundtables and networking opportunities over the course of two and a half days. \nLocation: In-Person Thailand
URL:https://www.rarediseasesinternational.org/event/apardo-annual-conference/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/APARDO-Events.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221125
DTEND;VALUE=DATE:20221127
DTSTAMP:20260521T223904
CREATED:20220721T124846Z
LAST-MODIFIED:20220721T124846Z
UID:10000276-1669334400-1669507199@www.rarediseasesinternational.org
SUMMARY:RAREFEST22
DESCRIPTION:FREE to attend\, RAREfest22 is a public-facing\, 2-day rare disease inspired festival featuring interactive talks\, demos and exhibits\, film and art showcasing ground-breaking science\, visionary technology and pioneering organisations\, improving lives and bringing hope to those affected by rare conditions. \nFOR THE EXPERTS. FOR THE CURIOUS. FOR ALL AGES. FOR EVERYONE. FOR FREE!
URL:https://www.rarediseasesinternational.org/event/rarefest-22-2022-11/
LOCATION:The Guildhall  Market Square\, The Guildhall Market Square Cambridge\, Cambridge\, CB2 3QB\, United Kingdom
CATEGORIES:Global Event,Hosted by RDI,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221122T140000
DTEND;TZID=UTC:20221122T220000
DTSTAMP:20260521T223904
CREATED:20220721T120524Z
LAST-MODIFIED:20220721T120524Z
UID:10000268-1669125600-1669154400@www.rarediseasesinternational.org
SUMMARY:3rd International FAIR data ‘visiting’ for Duchenne & Other Rare Diseases
DESCRIPTION:For the first time\, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimizing the use of patients’ data.
URL:https://www.rarediseasesinternational.org/event/international-fair-data-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20221117T000000
DTEND;TZID=Europe/Paris:20221117T000000
DTSTAMP:20260521T223904
CREATED:20221116T101610Z
LAST-MODIFIED:20221116T101610Z
UID:10000303-1668643200-1668643200@www.rarediseasesinternational.org
SUMMARY:Cobertura Universal de Salud para las enfermedades raras: Preguntas clave
DESCRIPTION:Taller previo a la conferencia\n17 de noviembre de 2022\n11:00-12:15 GMT-3 / 15:00-16:15 CET\nVirtual event → Haga clic aquí para participar : bit.ly/3O8nnVP (no es necesario registrarse antes) \n¡Complete la encuesta antes del taller! → https://forms.gle/z9RL5vSeUftpdeAL7
URL:https://www.rarediseasesinternational.org/event/cus-enfermedades-raras-2022-11-17/
CATEGORIES:Hosted by RDI,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/11/Website-Event-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221101
DTEND;VALUE=DATE:20221102
DTSTAMP:20260521T223904
CREATED:20220923T095305Z
LAST-MODIFIED:20220923T095305Z
UID:10000295-1667260800-1667347199@www.rarediseasesinternational.org
SUMMARY:World Acromegaly Awareness Day 2022
DESCRIPTION:Annual Awareness Day on November 1st\, to raise awareness for patients diagnosed with Acromegaly. \nThe goal is to help people with this rare endocrine disease get the timely diagnosis and effective treatment they need and deserve.
URL:https://www.rarediseasesinternational.org/event/world-acromegaly-day-2022611-1/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-18.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221025
DTEND;VALUE=DATE:20221026
DTSTAMP:20260521T223904
CREATED:20220928T142118Z
LAST-MODIFIED:20220928T142118Z
UID:10000301-1666656000-1666742399@www.rarediseasesinternational.org
SUMMARY:World Spina Bifida and Hydrocephalus Day 2022
DESCRIPTION:The International Federation for Spina Bifida and Hydrocephalus warmly INVITES persons with Spina Bifida and Hydrocephalus from all over the world as well as all interested parties to celebrate the 10th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) on the topic of “Elevate Your Voice” on October 25 2022. Various activities will take place around the WSBHD22 throughout the month of October. All events\, materials\, information and latest updates are available on www.worldspinabifidahydrocephalusday.com
URL:https://www.rarediseasesinternational.org/event/world-spina-bifida-and-hydrocephalus-day-2022-10-25/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-28.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221015
DTEND;VALUE=DATE:20221017
DTSTAMP:20260521T223904
CREATED:20220919T150550Z
LAST-MODIFIED:20220919T150550Z
UID:10000290-1665792000-1665964799@www.rarediseasesinternational.org
SUMMARY:The 1st World Patients Conference in Rome (Italy)
DESCRIPTION:WPA’s 1st World Patients Conference will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-rome-2022-10/
LOCATION:Crowne Plaza Rome – St. Peter’s\, Italy
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-13.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221012
DTEND;VALUE=DATE:20221016
DTSTAMP:20260521T223904
CREATED:20220721T094439Z
LAST-MODIFIED:20220721T113906Z
UID:10000264-1665532800-1665878399@www.rarediseasesinternational.org
SUMMARY:IPOPI’s XVII Global Patients’ Meeting 2022 (In-Person)
DESCRIPTION:IPOPI‘s National Member Organisations are all invited to the XVII Global Patients’ Meeting in Gothenburg\, Sweden\, 12-15 October 2022! Join us for an opportunity to finally meet up with the global PID community in person\, and enjoy three days of educational sessions presenting the latest medical advances on primary immunodeficiencies\, as well as fruitful discussions and skills-building opportunities.
URL:https://www.rarediseasesinternational.org/event/ipopi-global-patients-meeting-2022-10-12/
LOCATION:Gothenburg\, Sweden
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/07/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260521T223904
CREATED:20220228T124144Z
LAST-MODIFIED:20220721T130025Z
UID:10000170-1665360000-1665446399@www.rarediseasesinternational.org
SUMMARY:Drug Repurposing for Rare Diseases 2022
DESCRIPTION:Drug Repurposing for Rare Diseases highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. \nAn event unique in its collaborative and multi-stakeholder focus\, we bring patient groups\, researchers and industry professionals together to showcase excellent examples of rare repurposing.
URL:https://www.rarediseasesinternational.org/event/drug-repurposing-for-rare-diseases-2022/
LOCATION:America Square Conference Centre\, London\, 17\, One Crosswall\, America Square\,\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/02/Website-Event-Image-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221010
DTSTAMP:20260521T223904
CREATED:20220923T153052Z
LAST-MODIFIED:20220923T153611Z
UID:10000297-1665100800-1665359999@www.rarediseasesinternational.org
SUMMARY:2022 Rare Neuroimmune Disorders Symposium
DESCRIPTION:The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. On October 7 – 9\, 2022\, the RNDS will host a hybrid event—participants can choose to attend either in-person\, virtually via online streaming\, or partly in-person and partly online. An online pre-RNDS will be hosted on September 9\, 2022\, to dive deeper into topics related to your rare neuroimmune disorder and start meeting others that will attend the RNDS in October. We remain committed to hosting a conference that empowers our rare disease community to become better advocates for themselves and provides valuable resources to keep learning about these rare conditions. For the online-only registration: https://hopin.com/events/2022-rnds. \n  \nOnline and In person
URL:https://www.rarediseasesinternational.org/event/rare-neuroimmune-disorders-symposium-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-21.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220929T090000
DTEND;TZID=UTC:20220929T100000
DTSTAMP:20260521T223904
CREATED:20220927T214018Z
LAST-MODIFIED:20220927T214018Z
UID:10000300-1664442000-1664445600@www.rarediseasesinternational.org
SUMMARY:UHC Day campaign kick-off call
DESCRIPTION:Join us for a UHC Day campaign kick-off call on 29 September at 9 a.m. ET\, where we will reveal this year’s UHC Day theme\, share opportunities to engage with this year’s campaign\, and discuss exciting new #HealthForAll partnerships.
URL:https://www.rarediseasesinternational.org/event/uhc-day-campaign-kick-off-call-2022-09-29/
CATEGORIES:Global Event,Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-27.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220915
DTEND;VALUE=DATE:20220917
DTSTAMP:20260521T223904
CREATED:20220907T125708Z
LAST-MODIFIED:20220907T125708Z
UID:10000283-1663200000-1663372799@www.rarediseasesinternational.org
SUMMARY:1st WORLD PATIENTS CONFERENCE
DESCRIPTION:The 1st WORLD PATIENTS CONFERENCE\, organised by The World Patients Alliance\,  will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-2022-10-15/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220914T000000
DTEND;TZID=UTC:20220917T000000
DTSTAMP:20260521T223904
CREATED:20220831T075024Z
LAST-MODIFIED:20220831T075338Z
UID:10000281-1663113600-1663372800@www.rarediseasesinternational.org
SUMMARY:2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder
DESCRIPTION:Taking place in Rome\, Italy\, and with a virtual attendance option for those around the world\, The International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) is a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed.
URL:https://www.rarediseasesinternational.org/event/2022-symposium-on-the-ehlers-danlos-syndromes/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220907T120000
DTEND;TZID=Europe/Paris:20220907T130000
DTSTAMP:20260521T223904
CREATED:20220824T113029Z
LAST-MODIFIED:20220824T113029Z
UID:10000280-1662552000-1662555600@www.rarediseasesinternational.org
SUMMARY:Small Group Discussion - Advocating for a National Plan
DESCRIPTION:Rare Voices Australia (RVA) will host a small group discussion on lessons learned and successes on the road to advocating for Australia’s national plan. \nThe meeting is particularly designed for patient advocates. Please be ready to ask questions and be part of a conversation on this important topic.\n\nONLINE
URL:https://www.rarediseasesinternational.org/event/rva-small-group-discussion/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/08/Website-Event-Image-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220706T183000
DTEND;TZID=Europe/Paris:20220706T210000
DTSTAMP:20260521T223904
CREATED:20220505T160820Z
LAST-MODIFIED:20220506T091917Z
UID:10000205-1657132200-1657141200@www.rarediseasesinternational.org
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:The Cambridge Rare Disease Showcase\, a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs\, is back for the first time in two years!
URL:https://www.rarediseasesinternational.org/event/cambridge-rd-showcase-care-2022-7/
LOCATION:Clayton Hotel\, Cambridge\, 27-29 Station Rd\, Cambridge\, CB1 2FB\, United Kingdom
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220627
DTEND;VALUE=DATE:20220702
DTSTAMP:20260521T223904
CREATED:20220107T154403Z
LAST-MODIFIED:20220121T124902Z
UID:10000088-1656288000-1656719999@www.rarediseasesinternational.org
SUMMARY:European Conferences on Rare Diseases and Orphan Drugs (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/ecrd-2022/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/jpeg:https://www.rarediseasesinternational.org/wp-content/uploads/2022/01/Website-Event-Image-13.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220616T140000
DTEND;TZID=UTC:20220616T170000
DTSTAMP:20260521T223904
CREATED:20220425T155554Z
LAST-MODIFIED:20220426T094211Z
UID:10000111-1655388000-1655398800@www.rarediseasesinternational.org
SUMMARY:RDI Membership Meeting (Online)
DESCRIPTION:
URL:https://www.rarediseasesinternational.org/event/rdi-membership-meeting-2022-6/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/04/Website-Event-Image-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220608
DTEND;VALUE=DATE:20220610
DTSTAMP:20260521T223904
CREATED:20220506T094628Z
LAST-MODIFIED:20220506T094914Z
UID:10000213-1654646400-1654819199@www.rarediseasesinternational.org
SUMMARY:Rare Drug Strategy Conference
DESCRIPTION:This two-day conference brings together the stakeholders and the learnings from all CORD and others’ consultations.
URL:https://www.rarediseasesinternational.org/event/rare-drug-strategy-2022-6/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220531T090000
DTEND;TZID=Europe/Paris:20220531T180000
DTSTAMP:20260521T223904
CREATED:20220512T165800Z
LAST-MODIFIED:20220512T170141Z
UID:10000237-1653987600-1654020000@www.rarediseasesinternational.org
SUMMARY:Colloque Scientifique Annuel 2022\, Fondation Maladies Rares
DESCRIPTION:Each year\, Plateforme Maladies Rares are organising a conference bringing together the major players in rare disease research.
URL:https://www.rarediseasesinternational.org/event/colloque-scientifiques-foundation-maladies-rares-2022-5/
LOCATION:College de France\, 11 Place Marcelin Berthelot\, Paris\, 75231\, France
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-10.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220522
DTEND;VALUE=DATE:20220523
DTSTAMP:20260521T223904
CREATED:20220512T170839Z
LAST-MODIFIED:20220512T170839Z
UID:10000241-1653177600-1653263999@www.rarediseasesinternational.org
SUMMARY:Walk the Talk: Health For All Challenge\, WHO
DESCRIPTION:The World Health Organization will organize the 3rd edition in Geneva of the “Walk the Talk: Health For All Challenge” on Sunday 22 May\, on the morning of the World Health Assembly. \nThis in-person event will invite participants to run or walk over two routes: 3 km and 4.2 km. People of all ages and abilities will start at Place des Nations from 8.30am. \nPeople around the world are invited to take part in the event by tracking their performances through a dedicated app. By registering\, participants will receive a login to take part-in anywhere in the world. More information is coming soon.
URL:https://www.rarediseasesinternational.org/event/walk-the-talk-who-2022-5/
CATEGORIES:Hosted by RDI Member
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/05/Website-Event-Image-11.png
ORGANIZER;CN="The World Health Organization":MAILTO:https://www.who.int/
END:VEVENT
END:VCALENDAR