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X-WR-CALDESC:Events for Rare Diseases International
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DTSTART;TZID=Europe/Paris:20220907T120000
DTEND;TZID=Europe/Paris:20220907T130000
DTSTAMP:20261113T102448
CREATED:20220824T113029Z
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UID:10000280-1662552000-1662555600@www.rarediseasesinternational.org
SUMMARY:Small Group Discussion - Advocating for a National Plan
DESCRIPTION:Rare Voices Australia (RVA) will host a small group discussion on lessons learned and successes on the road to advocating for Australia’s national plan. \nThe meeting is particularly designed for patient advocates. Please be ready to ask questions and be part of a conversation on this important topic.\n\nONLINE
URL:https://www.rarediseasesinternational.org/event/rva-small-group-discussion/
CATEGORIES:Hosted by RDI Member
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220914T000000
DTEND;TZID=UTC:20220917T000000
DTSTAMP:20261113T102448
CREATED:20220831T075024Z
LAST-MODIFIED:20220831T075338Z
UID:10000281-1663113600-1663372800@www.rarediseasesinternational.org
SUMMARY:2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder
DESCRIPTION:Taking place in Rome\, Italy\, and with a virtual attendance option for those around the world\, The International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) is a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed.
URL:https://www.rarediseasesinternational.org/event/2022-symposium-on-the-ehlers-danlos-syndromes/
CATEGORIES:Hosted by RDI Member
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DTSTART;VALUE=DATE:20220915
DTEND;VALUE=DATE:20220917
DTSTAMP:20261113T102448
CREATED:20220907T125708Z
LAST-MODIFIED:20220907T125708Z
UID:10000283-1663200000-1663372799@www.rarediseasesinternational.org
SUMMARY:1st WORLD PATIENTS CONFERENCE
DESCRIPTION:The 1st WORLD PATIENTS CONFERENCE\, organised by The World Patients Alliance\,  will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-2022-10-15/
CATEGORIES:Hosted by RDI Member
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DTSTART;TZID=UTC:20220929T090000
DTEND;TZID=UTC:20220929T100000
DTSTAMP:20261113T102448
CREATED:20220927T214018Z
LAST-MODIFIED:20220927T214018Z
UID:10000300-1664442000-1664445600@www.rarediseasesinternational.org
SUMMARY:UHC Day campaign kick-off call
DESCRIPTION:Join us for a UHC Day campaign kick-off call on 29 September at 9 a.m. ET\, where we will reveal this year’s UHC Day theme\, share opportunities to engage with this year’s campaign\, and discuss exciting new #HealthForAll partnerships.
URL:https://www.rarediseasesinternational.org/event/uhc-day-campaign-kick-off-call-2022-09-29/
CATEGORIES:Global Event,Hosted by RDI Member
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