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SUMMARY:UIA Associations Round Table Brussels 2022
DESCRIPTION:The UIA Round Tables provide an opportunity to learn through networking and through practice\, to meet other international associations and share experience and knowledge to help you run your organization better.
URL:https://www.rarediseasesinternational.org/event/uia-round-table-brussels-2022-5/
LOCATION:Marriott Grand Place\, Brussels\, Belgium
CATEGORIES:Global Event
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DTSTART;VALUE=DATE:20220513
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SUMMARY:Improving Rare Disease Diagnostics & Care (Online)
DESCRIPTION:Join The Hill for a discussion on improving the diagnostic journey for the 30 million Americans living with rare disease.
URL:https://www.rarediseasesinternational.org/event/diagnostic-care-rd-2022-5/
CATEGORIES:Global Event
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DTSTART;TZID=Europe/Paris:20220519T190000
DTEND;TZID=Europe/Paris:20220519T203000
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SUMMARY:How Patient Involvement is Making a Difference in HTA: PCIG Webinar
DESCRIPTION:HTAi’s Patient and Citizen Involvement in HTA Interest Group (PCIG) will be looking at “Stakeholders’ perspectives of impact in patient involvement in HTA.” The project team collects and evaluates multi-stakeholder perspectives about the perceived difference patient involvement has made in specific HTAs or HTA processes. \nThe team and invited speakers will share case examples of impact from different stakeholders’ perspectives and review the preliminary findings from this research\, highlighting the various domains and types of impact identified. The webinar will also provide an opportunity to discuss good practice and encourage reflection on patient involvement processes.
URL:https://www.rarediseasesinternational.org/event/patient-involvement-rare-deases-webinar-2022-5/
CATEGORIES:Global Event
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