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X-ORIGINAL-URL:https://www.rarediseasesinternational.org
X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20250101T000000
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DTSTART;TZID=UTC:20250212T140000
DTEND;TZID=UTC:20250212T150000
DTSTAMP:20260503T011723
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LAST-MODIFIED:20250109T104250Z
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SUMMARY:RDI PUBLIC WEBINAR: Rare Disease Expertise \, Centers and Networks: Results of the Survey
DESCRIPTION:Join us to for a public webinar presenting the results of the RDI’s recent survey on rare diseases expertise. \nWe will share key findings from the survey on rare disease expertise around the globe\, including insights into care-providing centers\, networks\, and collaborations. \nIf you would like to attend and haven’t register yet\, register here.
URL:https://www.rarediseasesinternational.org/event/rdi-public-webinar-rare-disease-expertise-center-and-networks-results-of-the-survey/
CATEGORIES:Hosted by RDI
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DTSTART;TZID=UTC:20250227T143000
DTEND;TZID=UTC:20250227T160000
DTSTAMP:20260503T011723
CREATED:20250122T115845Z
LAST-MODIFIED:20250213T085252Z
UID:10000368-1740666600-1740672000@www.rarediseasesinternational.org
SUMMARY:Rare Disease Day Webinar-From Grassroots to Global: Growing Momentum towards the WHA Resolution on Rare Diseases
DESCRIPTION:This year’s Rare Disease Day theme “More than You Can Imagine” reminds us of the milestones we have achieved by working together as a global community — most recently\, in our collective efforts to advocate for a World Health Assembly Resolution on Rare Diseases. \nThere is more power\, dedication and commitment in our community than we ever imagined\, and we are proud to bring our members\, partners and friends together to reflect on our progress — how far we have come\, and how far we can go. \nJoin us for a public webinar on Thursday\, 27 February 2025 at 14:30 CET and find out how we can imagine a better future for Persons Living with a Rare Disease — together! \nRegister now.
URL:https://www.rarediseasesinternational.org/event/rare-disease-day-webinar-from-grassroots-to-global-growing-momentum-towards-the-wha-resolution-on-rare-diseases/
CATEGORIES:Hosted by RDI
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