Duchenne Patient Academy is a collaboration between the World Duchenne Organization and Duchenne Data Foundation. It aims to inspire and equip patient advocates to become change makers and build a better future for people living with dystrophinopathies. So far, it has trained over 500 DMD/BMD patient advocates from 52 countries. ONLINE Applications for Duchenne Patient Academy open mid-September.
Ibero-American Rare Diseases Alliance (ALIBER) Annual Conference, on 9 February 2023 in Costa Rica. See event agenda.
For the First time, the 1st International UAE Rare Disease Society Congress aims to gather all the patients’ community who is suffering with rare diseases conditions with the help of our genetic scientists, clinical geneticists and different subspecialties for rare disease. This one-of-a-kind event will bring together important clinical practitioners, academics, and experts to debate […]