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SUMMARY:4th Symposium on Birth Defects and Rare Diseases (Hybrid)
DESCRIPTION:Theme: “Patient Centricity: Key to Achieving Universal Health and Inclusion” \nMary Wang (Science Policy Manager\, Rare Diseases International) and Matt Bolz-Johson (Programme Director – Collaborative Global Network for Rare Diseases\, Rare Diseases International) will speak about regional and global collaborative initiatives. 
URL:https://www.rarediseasesinternational.org/event/birth-defects-symposium-2022-5/
LOCATION:Kumasi\, Ghana
CATEGORIES:Hosted by RDI Member
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DTSTART;TZID=Europe/Helsinki:20220506T120000
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CREATED:20220503T095521Z
LAST-MODIFIED:20220504T091057Z
UID:10000201-1651838400-1651842000@www.rarediseasesinternational.org
SUMMARY:IFSBH MEMBERS TRAINING : From local to global – How to influence international actions through national advocacy (Online)
DESCRIPTION:The next IF members training on policy and advocacy will take place on May 6 2022 at 12 PM Brussels time. \nA session to discuss the role of civil society in shaping the activities of international organisations and how campaigns for actions are designed and implemented. \nDolores Cvitičanin – Public Affairs Manager at RDI – will speak further on how to use a UN Resolution on a National Advocacy level.\n\nParticipation is limited to two participants from each IF member association\n 
URL:https://www.rarediseasesinternational.org/event/ifsbh-membership-training-2022-5/
CATEGORIES:Hosted by RDI Member
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