media coverage

Articles

• A global community demands visibility for people with a rare disease, Health Awareness, 2023
• Ensuring children with a rare disease are no longer left behind, Health Awareness, 2022
• Transforming care for rare diseases around the world, Health Awareness, 2022
• Out of the Darkness, Rare Revolution Magazine, 2022
• Leave no one behind – UN resolution for families living with a rare disease, Health Awareness, 2021
• Rare diseases are often ignored by public policies, the journey towards full inclusion is long, Nonprofit, 2021
• Making rare diseases a human rights priority, Health Awareness, 2021
• Qatar affirms commitment to actively contribute to international efforts to achieve comprehensive, sustainable development, Gulf Times, 2021
• Letizia takes the floor before the United Nations on Rare Diseases, Market Research Telecast, 2021

Podcasts

• World Haemophilia Day – Policy Day, 2021
• Finding rare diseases in common places, Life and Sciences, 2021

Videos

• Adult Life & Duchenne, World Duchenne Awareness, 2021

Press Releases

• First-ever United Nations Resolution to Increase Visibility for the 300 Million Persons Living with a Rare Disease, 16 December 2021
• RDI and Green Arrow Capital partner to advance Agenda 2030 and “Leave No One Behind”, 22 February 2021