Access online resources designed by RDI member organisations to support the rare disease community through the COVID-19 pandemic.
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Read the statement in Japanese, translated by ASrid (Japan Patients Association)
Developed by Regional Rare Disease Alliances
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Survey Findings “Impact of the COVID-19 pandemic on the international rare disease community.”
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Survey Report “Managing Rare Diseases in Asia Pacific During COVID-19”
Developed by National Rare Disease Alliances
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Statements from Rare Disease Patient Alliances
Statements and resources from global partners and other vulnerable groups
Care Guidelines from Patient Alliances Federations
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