Participation in the Expert Group Meeting on the right of persons with disabilities to the highest attainable standard of physical and mental health in Geneva, Switzerland on 15-16 May 2018 hosted by the UN Special Rapporteur.
Oral Statement at Conference of States Parties to Convention on the Rights of People with Disabilities (COSP CRPD) in New York – June 2018. Video available here.
Inclusion of rare diseases in the final Report of the Special Rapporteur on the Rights of Persons with Disabilities, October 2018.