Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases

RDI brings together national and regional rare disease patient organisations from around the world as well as international rare disease-specific federations to create the global alliance of rare disease patients and families.

RDI’s mission is to be a strong common voice on behalf of all people living with a rare disease around the world, to advocate for rare diseases as an international public health priority and to represent its members and enhance their capacities.

EURORDIS Rare Disease International RareConnect Rare Disease Day European Conference on Rare Diseases