30 October | 14:00 – 17:30
Hotel Catalonia Barcelona Plaza
14:00 – 14:05 | Opening Remarks
Welcome and introductory comments from Alexandra Heumber Perry, Chief Executive Officer of RDI
14:05 – 15:30 | Session 1: Mapping Out Our Vision For the Future
Moderated by Debra Bellon (Strategic Engagement Manager, RDI) and Diego Fernando Gil Cardozo (President, FECOER) In this participatory session, members will be invited to reflect on and discuss their idealistic but realistic vision of their medium- and long-term objectives at the national, regional and global levels.
15:30 – 15:50 | Coffee Break
hosted by Rare Diseases International
15:50 – 16:50 | Session 2: Pathways to Achieving Our Vision Together
A panel discussion moderated by Durhane Wong-Rieger, Chair of the RDI Council and President and CEO of the Canadian Organization for Rare Disorders. Leaders of patient organizations from around the world will discuss their key wins, the challenges they have faced and overcome to achieve them, the tools and facilitators that have helped them along the way, and the role of global alliances such as RDI in contributing to their progress.
16:50 – 17:20 | Q & A Session with our Partners from the Alliance of Companies
17:20 – 17:30 | Closing Remarks