2019, December – RDI and the World Health Organization sign Memorandum of Understanding outlining a framework for collaboration
2020, June – RDI Member Organisations worldwide publish a common statement on the COVID-19 responses and recovery
2019, December – RDI joins the Civil Society Engagement Mechanism of UHC2030
16 December, UN General Assembly formally adopts UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families”
November 2021, RDI and the International Rare Diseases Research Consortium (IRDiRC) launch the IRDiRC/RDI Global Acess Working Group to improve access to treatments.
2019, September – Joint advocacy from the global rare diseases community results in the inclusion of rare diseases in the seminal UN Political Declaration on Universal Health Coverage
2019, February – the NGO Committee for Rare Diseases and RDI co-organise policy event at the United Nations
2018, May – RDI becomes an independent organisation with a separate legal identity
RDI is initiated by Rare Disease National Alliances for USA, Canada, Japan, Australia and Russia and EURORDIS – Rare Disease Europe.