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Archives: Timeline Express Announcements

Post type for adding timeline express announcements to the site.

MoU with WHO

Posted on December 15, 2021 by hlawulani

2019, December – RDI and the World Health Organization sign Memorandum of Understanding outlining a framework for collaboration

COVID-19 STATEMENT

Posted on December 15, 2021December 15, 2021 by hlawulani

2020, June – RDI Member Organisations worldwide publish a common statement on the COVID-19 responses and recovery

UHC 2030

Posted on December 15, 2021December 15, 2021 by hlawulani

2019, December – RDI joins the Civil Society Engagement Mechanism of UHC2030

UN Resolution

Posted on December 15, 2021December 15, 2021 by hlawulani

16 December, UN General Assembly formally adopts UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families”

IRDiRC/RDI Global Working Group

Posted on November 15, 2021December 15, 2021 by hlawulani

November 2021, RDI and the International Rare Diseases Research Consortium (IRDiRC) launch the IRDiRC/RDI Global Acess Working Group to improve access to treatments.

UN Declaration on UHC includes Rare Diseases

Posted on September 17, 2021October 27, 2021 by hlawulani

2019, September – Joint advocacy from the global rare diseases community results in the inclusion of rare diseases in the seminal UN Political Declaration on Universal Health Coverage

First United Nations Policy Event

Posted on September 17, 2021September 17, 2021 by hlawulani

2019, February – the NGO Committee for Rare Diseases and RDI co-organise policy event at the United Nations

Formal Registration

Posted on September 17, 2021January 6, 2022 by hlawulani

2018, May – RDI becomes an independent organisation with a separate legal identity

RDI Statutes

RDI LAUNCHED

Posted on September 2, 2021January 6, 2022 by Jean-Marc Sfeir

RDI is initiated by Rare Disease National Alliances for USA, Canada, Japan, Australia and Russia and EURORDIS – Rare Disease Europe.

Read Statutes

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