2023, September – RDI, EURORDIS-Rare Diseases Europe, Agrenska, FEDER and the NGO Committee for Rare Diseases co-organize a formal side event at the United Nations, sponsored by the Permanent Missions of Spain and Sweden and the Ministry of Health of Qatar, on the achieving Universal Health Coverage for PLWRD
2019, December – RDI and the World Health Organization sign Memorandum of Understanding outlining a framework for collaboration
2020, June – RDI Member Organisations worldwide publish a common statement on the COVID-19 responses and recovery
2019, December – RDI joins the Civil Society Engagement Mechanism of UHC2030
16 December, UN General Assembly formally adopts UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families”
November 2021, RDI and the International Rare Diseases Research Consortium (IRDiRC) launch the IRDiRC/RDI Global Acess Working Group to improve access to treatments.
2019, September – Joint advocacy from the global rare diseases community results in the inclusion of rare diseases in the seminal UN Political Declaration on Universal Health Coverage
2019, February – the NGO Committee for Rare Diseases and RDI co-organise policy event at the United Nations
2018, May – RDI becomes an independent organisation with a separate legal identity
RDI is initiated by Rare Disease National Alliances for USA, Canada, Japan, Australia and Russia and EURORDIS – Rare Disease Europe.