RDI Webinars

RDI organises Webinars to consult with its Members and other stakeholders

Webinars will be held in English (unless stated otherwise on the invitation)


Past Webinars

RDI Action Plan Q&A

Wednesday, October 19 from 4PM to 5PM (CEST)

Description: This webinar was an opportunity for participants to give their opinion on the draft RDI 2017 Action Plan. Yann Le Cam, member of the RDI Council and Chief Executive Officer of EURORDIS-Rare Diseases Europe, and Paloma Tejada, Senior Manager of RDI, presented the draft Action Plan.

If you want to give feedback on this webinar, please go to:



RDI By-laws Q&A

Thursday, September 29 from 4.00PM to 5PM (CEST)

Description: The webinar was an opportunity for Members to ask questions, discuss and give their feedback on RDI’s Governance by commenting on the Draft By-Laws proposed by the Council.

To listen to the recording of the webinar and give your feedback on the By-laws, click on:


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases