RDI IS A STRONG VOICE FOR PERSONS LIVING WITH A RARE DISEASE AND THEIR FAMILIES AROUND THE WORLD.
Become a member
Formal Side Event to the High Level Meeting on Universal Health Coverage 2023 – New York City/Hybrid
RDI Membership Event – 30 October – 2 November 2023 – Barcelona, Spain
RARE DISEASES INTERNATIONAL
RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia.
FIRST UN POLICY EVENT
RDI co-hosts the first Rare Disease Day Policy Event at the United Nations.
UHC INCLUDES RARE DISEASES
Rare Diseases are included in the UN Political Declaration on Universal Health Coverage
AGREEMENT WITH WHO
WHO and RDI sign a Memorandum of Understanding for future collaboration
The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”
GLOBAL ADVOCACY CAMPAIGN
Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021
toolkits & Resources
articles & papers
global network expert series